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View Full Version : on the question of stim and what is to be done about it...


Dad
10-12-2001, 05:48 AM
On another board I was asked about "stim" by a newbie parent, and thought I would post my response here also.


Stimming is psyche shorthand for self-stimulating activity, those actions which are often poorly understood by ehavioral "experts" and other "professionals" whose main connection with autism is not personal, but merely an esoteric activity conducted from some ivory tower. When an autie flaps their hands, or flicks their fingers, or taps, or performs any similar repetitive, stereotypic activity, that is a stim. When they repeat the same sound over and again, or make odd noises, that is a verbal stim. When they wave things infront of their eyes, or will look at flashing or shining lights, that is a visual stim. For all we know when auties continue to mouth things or lick things, that may be a taste stim.

Stims serve a very real function in auties, and these people should never be forced to stop stimming. Many if not all auties have very real processing problems, where the damage that is in their brain sort of cross wires their senses. It has been well documented that many auties have acute or even hyper senses. They can hear the buzzing of fluorescent lights as a loud drone. They can smell things that nt's automatically block out. Their sense of touch is much more sensitive than us "normals". The world around us is full of sights and sounds and smells and textures that form a riot, a cacophony of sensory input that would overwhelm any of us if our brains didn't automatically filter them out. (remember the classic experiment where you slice an orange and the smell pervades the room, but after a few minutes, unless you are focusing on the orange, you cease to smell it?)

Stiiming is a pressure release to this riot of input. When an autie begins to feel overwhelmed by all the things around them bombarding them, each little bit demanding attention, they will stim to block all of it out. They will focus on the sight of their hand waving, or their feel of their hand rubbing the wall or tapping the desk, and it allows them to push everything else away so that they can focus on what they wish to focus on again.

Stimming is a pressure valve for auties, and just like a cooker with a faulty valve, if we do not allow them to vent this, they will head for an explosion, which we call meltdown. This is not the only source of meltdowns, but it is a source.

And if we stop and think about it, why is it that we expect them to cease stimming? For their benefit? Obviously not, if we think about the mechanism of stim and what it really is. No, we expect them to stop because we view it as "not normal". We expect them to stop because we do not want to allow them to be autisitc, we want them to be "normal".

But we do not force ourselves to stop stimming.

If you twirl your hair when you are nervous, that is a stim. If you pace when you are on the phone, you are stimming. If you tap your hands while sitting in an interview, or hum in an absent minded way when you work, or even crack your knuckles, you are a stimmer. In reality, nearly all of us stim, and we do not force ourselves to stop. Why should an autie be forced to stop, just because we do not like their stimming, or the frequency is greater than ours? And stimming serves a very real, positive purpose for them that cannot be replaced with something else (unless you count heavily medicating them to shut down their sensory perception altogether).

Better than forcing them to stop is to help them redirect their stimming to a less obvious one. So the flapper who waves their hands in the air can be encouraged instead to become a tapper who mre inconspiculously drums their fingers against their thigh. A child who howls or gurgles or chortlers or grunts may be encouraged to softly hum a melody. A child who licks things or places all in their mouth can be given a smaller item instead to place inside their mouth where is is less offending (but not so small they may choke!)

The issue of the palatability of an autistic child in our view is a problem that lies not with the autistic child, but inside the viewer. Do we force Blacks to lighten their skin because we do not like dark skin? Should we force Asians to have "corrective" eye surgery to give them rounder eyes? Would it be proper to slap the hands of lefties to force them to be righties? Absolutely not! So it is with auties. They have all the same rights to person and identity as any of us "regular" people, and to view it in any other manner is a crime against their person, against their basic humanity.

I will climb down of my soapbox now. Did I answer your question?

ets
11-09-2001, 07:55 PM
Hi Dad,
Thank you for saying what I've pretty much thought all along when I watch my sons stim. Because it is not visually attractive to "normal" society, then they think there is something wrong with it and must be stopped. It makes them happy and helps them maintain some equalibrium when their senses get overloaded. I,for one, appreciate your view on this topic. I thought I was alone in this way of thinking.
Terry:)

waalkest
11-22-2001, 05:47 AM
and what about my son who bangs on the walls constantly and twists his wrists so bad that one of them is very red? How do I limit this for him?:confused:

sunsetdancer
03-18-2005, 03:22 PM
I think that I may have an answer for you. Though, it may not apply to everyone. I have recently come across some work that they are doing in Korea as well as beginning to do in the US. Headbanging may be a stim. On the other hand it may be due to high intracranial pressure in the childs head. This occurs when the bones are too tightly sealed around the frontal temporal lobe. Creating a sort of "autism. " I would imagine this to be painful or uncomfortable. You have problably read research that states that autistic children's brains seem to be larger than others. There is something called mild trigonocephaly also...which, has increased with the medical request to always "back sleep babies". A favored side of the head becomes flat or disfigured (though sometimes not noticable) and this can also cause the bones to seal together -years before they are supposed to. A child's "sutures" should not seal until around age 5 when the head is fully grown. In extreme cases trigonocephaly alters the looks of the head. In the US these children recieve help in the form of plastic surgery. However, if it is a mild case in the US a child is usually not helped (except perhaps the child was fitted with a helmet to try to fix appearances only), Yet, the child may still have sutures closing too early. This can be seen on a 3 D cat scan...a ridge running anywhere from the top of the head to the top of the nose. On my son-I can still feel this ridge with my finger. Though, this is becoming more difficult to feel. For more info there is a parents website to visit...http://regalia.nir.jp/~graham/cover-e.html.

My problem has been trying to find someone in our area who is just willing to do a 3D Cat Scan. They keep offering me MRI's. Which, makes me think they just don't get this. Anyways, here's some of the research about the larger heads.

Thirty eight high-quality magnetic resonance image (MRI) scans of individuals with autism who were more than 12 years old were obtained. In addition, 38 MRIs of individuals over 12 years of age who did not have autism were also obtained. These MRIs were used as controls. Through careful measurement of the volume of the brain, Piven et al. reported that in almost half of the individuals with autism, the total brain volume was greater than in individuals without autism.
These results confirm earlier MRI findings reported by the same group. These results suggest a problem in brain development (as opposed to a later injury). Unpublished data suggest that the enlargement may occur in particular regions of the brain and is not a generalized phenomenon. These results should provide important clues about the neurobiology of autism. For example, a new group of genes that are responsible for brain growth have recently been discovered. Abnormalities in these genes may underlie our findings of regional brain enlargement in autism. Also, since brain enlargement occurred in almost half (46%) of the subjects studied, brain size and shape may aid us in eventually identifying subgroups of autistic individuals with different causes for their autism. Dr. Piven and his associates are continuing to study imaging data and will be trying to obtain further funding to follow-up these results over the next year.
Piven J., Arndt S., Bailey J., Havercamp S., Andreasen N.C., Palmer P. An MRI study of brain size in autism. American Journal of Psychiatry: 12: 1145-1149, 1995.

Lwaxy
03-20-2005, 07:10 PM
Actually, when I headbanged, it was because all stims failed. I didn't headbang to stim, but to de-stim. I didn't want any more inout from any source, concentrate on nothing.

orangestays4evr
12-09-2007, 08:32 PM
I would have to disagree with Dad on the stimming. People with autism can learn functional ways of reducing stimming and sensory integration dysfunction (SID). An occupational therapist (OT) specializing in autism or early intervention is a professional trained in the 7 (yes, I said 7: tactile, olfactory, visual, taste, auditory, proprioceptive and vestibular) sensory systems and fine motor systems. SID is a neurological disorder. Many neurological disorders can be helped. The brain is very dynamic, especially in children. There are therapies that can be implemented to reduce hypo and hyper sensitivities by physically changing the brain. Stimming for a limited period of time is okay, but it can take up someone's whole day. It can severely interfere with learning and daily living. Behavior therapists can also help implement ways to reduce stimming behavior by teaching functional play and increasing communication and social skills. Most people with autism will not become 100% typical, but do you think it is fair to let your child lie on the floor staring at Thomas the Tank Engine's wheels all day? That is what they would do 40 years ago when autistic children were placed in residential institutions. No expectations were placed upon them. Their brains were left to rot. Stimming can take up time for many valuable learning opportunities. We should try to shape this into a more appropriate activity. People with autism can learn very successfully with the assistance of trained professionals.