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Momx3mjn
10-07-2005, 11:01 AM
First, I would like to say hello to everyone since I am a new member.

I have a 5 year old son, Jack, who was diagnosed a year ago with high-functioning Autism /possible Aspergers. After diagnosis, I placed him in the public school Spec. Ed. Pre K program. Prior to this, his speech was very limited. He spoke only one word requests and responses. His understanding of what was being said to him and around him was very limited as well. I was very pleased to see him doing well in the PreK program, and he is now speaking and understanding much much better! His aggressive behaviors had also gotten better.
At the end of last school year I was informed that Jack would be placed in a regular K classroom this year. Although a bit weary, we decided ...lets give him a chance, maybe he will do well.
When I requested Extended School Year services for him at that IEP meeting I was told "sorry, we don't offer ESY". After looking into it I found that if there is a need for it, the school was required to provide ESY. To make a long story short here...I ended up getting ESY for him, but, for only 45 min 1 x a week. At that point I took what I could get for him since we were already 2 &1/2 weeks into summer vacation. I know now to start fighting for this before the end of school year.
Now.....he is in regular K class. His IEP states he is to have Speech Language Therapy 2 x week -30 min each session. This is not individual, but in a group which I am not happy about, but again took what they would give him. He is also supposed to have Spec. Ed. Resource 5x a week 90 min a day. I recieved a letter from school the other day calling an IEP meeting for this Tuesday. Confused as to why a meeting would be called when his current IEP doesnt end until 6/07/06, I called and asked why. They said they feel Jacks IEP needs to be changed. I requested a draft IEP, which I recieved yesterday. They have not changed his speech but want to make a change to his resource time. This is what is stated:
New frequency of Spec Ed and related services per day/week/mo:
30 min per day,inclusion in gen. ed. classroom and/or resource.
General Educator or Special Educator
New Annual Goals and short term Objectives:
Jack will improve (to age appropiate level) social skills by
participating and interacting in classroom.
Evaluation procedures will include consult with gen. ed. teacher weekly.

I told them on the phone that I will not agree to this. She argued that they wanted what was best for Jack ,and they feel he should'nt be taken out of the regular class as much as the origional IEP calls for (which they havent even begun to do yet BTW, and he has been in school a month)and they think by taking him out this much it makes him seem so different to the other children and to himself.
He is supposed to be taken out for resource during language arts, since this is his weakness and worked with individually on what the class would be working on each day. This is what they told me at the end of last year when the original IEP was done for this year. So far in the regular classroom they have covered 5 letters of the alpabet and worked on writing thier names. He has not been worked with individually. No resource at all yet. He does'nt even know one of the letters they have covered so far....can't tell me what they are, can't write them, or tell me what sound they make. He can copy his name if it is there for him to look at. The teacher who worked with him over the summer taught him this. She also gave him a K entry test this summer and said he was not ready according to this test.
Now they want to cut back the extra help he is SUPPOSED to get!!
Jack is a bright child, I tell them. He just learns differently. He does'nt dowell in large groups, and gets distracted. His speech and understanding of language is still limited. His IEP doesnt state that he is Autistic. It says Developmentally Delayed- Speech/Lang Impaired. Whenever I even mention Autism to them they say "Ma'am , we do not have him down as Autistic, and the fact that a doctor has labeled him as such does not entitle him to specific treatment or teaching methods. Even if we did have him labeled as Autistic , that doesnt mean he would be taught any differently"
How can they argue that he will feel different or be seen as different if he is taken out of the classroom for extra , more individualized help? It seems to me that being in a classroom of other children who understand "get' what he isnt will make him feel different and seem different to the other children.
What would you all do in my shoes? Am I wrong for feeling this cut back in resource is a bad thing and will have a bad outcome? And maybe I am wrong but doent the way they worded the IEP revisal seem to say they dont even have to work with him individually or out of the classroom?
I apologize for such a long post !!

Deester
10-07-2005, 01:18 PM
Stick to your guns. Tell them why 'he needs' not should have or I want it "WHAT HE NEEDS". Keeping that in mind because they are suppose to give a child what they need and what is appropiate. Use this words often.

Document his regression from the summer and state for the next summer ESY means just that. To take what they have during the year and extend it out to the summer time. No shortend times and if you need to hire a lawyer do it. It'll be the best money invested into your child.

Give examples of how he is not succeeding such as the issues of learning letters. That's a great example to show why he still does need one to one at the resource room.

I truly believe that all school systems will try to give you as little as possible and only the squeeky wheel gets the grease!!

Denise

Lisa S
10-07-2005, 03:22 PM
Hi Momx3mjn,

I agree with Deester. Too often schools try to get away with doing as little as possible for your child because they have limited resources. If it were me, I would consult a special education attorney or an special education advocate about the school wanting to cut Jack's one-on-one time when he needs more of it, not less, and also about the ESY issue. If it were me, I would go to due process, if necessary to fight this, and I would hold their feet to the fire about not doing what they are supposed to do. I think the squeaky wheel does get the grease, unfortunately, so it is a balancing act between being the squeaky wheel and not being too combative with the people who deal with your child.

Just my two cents worth,
Lisa

Lisa S
10-07-2005, 09:51 PM
Hi Momx3mjn,
I just saw this article that may be of some help to you. Here is a link to it:

http://www.tacanow.com/ClosingtheDealPDF.pdf#search=

Hope this helps.
Lisa

Momx3mjn
10-08-2005, 01:45 AM
Deester- I will definately to stick to my guns. After all if I don't fight for Jack ..noone else will.
Can anyone tell me if they are required to stick to the origional IEP with the end date of 6/7/2006 or can they change it whenever they want? (The origional is for 90 min per day in resource)
LisaS- That article was very helpful! Thanks!!! I do need to try my very best to take her approach. I find that my temper tends to take over and i have to put myself in check several times at these meetings.
I don't plan to agree to or sign this IEP. I do not feel its in my sons best interrest at all. So...after I refuse..then what?
Thankyou both for the words of encouragement and advice!!!

VTMama
10-09-2005, 08:01 PM
Whenever I even mention Autism to them they say "Ma'am , we do not have him down as Autistic, and the fact that a doctor has labeled him as such does not entitle him to specific treatment or teaching methods. Even if we did have him labeled as Autistic , that doesnt mean he would be taught any differently"

Girl! What state do you live in?! I'm very sorry if they have limited resources, but they are REQUIRED to give him the resources which were agreed upon in the original IEP. It is possible that they need to be reminded that IEP stands for INDIVIDUAL Education Plan. Yikes! Hmmmm.....I wonder if they would be so willing to accommodate you if you were the one to 'call' a new IEP and insist on MORE services? Sorry, guess I'd better step off this soap box.

Are you in a rural or city type area? Check out your state's Autism Society. They may have resources to link you to an advocate.

Best of luck to you!
Viv

Momx3mjn
10-10-2005, 11:08 AM
VTMama- When I requested ESY services for my son , and they eventually gave him 45 min/ 1x per week, I said thats not enough. The head of the spec ed dept in this area said, and I quote " We just don't have the same resources here as we would if we lived in a city, like Richmond" So, that really got to me. Because we live in the country, my son is not entitled to his educational needs being met? Thats just ignorent! IMO he should be able to get the same no matter where we live in VA. They try to make me feel like my opinion is wrong. But I think its just they are trying to get away with doing as least as possible OR they are just ignorent to what resources are available for my son.
I considered just moving to Richmond or at least closer than we are now. Its an hour and a half drive from here. This would mean selling the home we just finally got and uprooting my children all over, and if this is what I have to do I will. But, when I think about it I realize I should not have to! Maybe I just need to be the parent who finally makes enough noise to get something done to change this "country" way of educating the special needs children around here. I don't know if I can, but I can try.
This past year has been very trying. I am trying to make sure my sons needs are met , but without much success. The biggest problem is not knowing exactly what I can or can't make the school do for him. His doctor has not been much help in pointing us in a right direction . Besides diagnosing him, all he has really done is write perscriptions and collect our money. My husband and I are in the process of getting him in with Childrens Hospital and hope maybe the people there will help us figure this whole thing out. Something has got to change!

Lisa S
10-10-2005, 01:08 PM
Hi Momx3mjn,

Here is a link to Wrightslaw Yellow Pages for Kids for the state of Virginia. Maybe you can find an educational advocate or someone on the list who can help you know what to ask for. There are some Autism groups on there too.

http://www.yellowpagesforkids.com/help/va.htm

Hope this helps,
Lisa

MCW's Mom
10-10-2005, 10:19 PM
Hi there, I am very new to this site...I joined today! What you said about the town telling you that "because a doctor diagnosed your child with autism/pdd, it doesn't mean they have to do anything about it" really distresses me. My daughter (will be 5 in December) was getting services as a "developmentally delayed" child, (The PPS is not designed to diagnose) then when I got the phychiatrist's letter diagnosing her with a PDD most likely AS, the services were more defined. I also got home visits by a board certified Behavioral Analyst, and the school psychologist. I also got another day added to her schooling...5 instead of 4. I live in the suburbs...south of Hartford, so I do have close access to city hospitals and doctors. I feel very blessed to have such a receptive and willing PPS team on my side. I have not yet had the need to throw out the terms "advocate" or "due process" to the PPS team. In your case, I would certainly stick to your guns, and look into getting an advocate for any further PPT (IEP) meetings. Do not let them "Ma'am" you into submission.
Take care.

Momx3mjn
10-10-2005, 11:17 PM
Thanks everyone! The meeting is in the morning...so I will see how it goes.

mlwear
10-18-2005, 07:05 PM
As a Virginia resident I can tell you that they are full of crap. We live in Hanover County just a bit north of Richmond. Services are a bit easier to get in Henrico County, but it doesn't matter where you live. They must provide the services your child needs. End of story.
I will PM you with some additional info.

Momx3mjn
10-21-2005, 11:58 AM
All 3 of my children, my husband and I have all taken turns with the flu,as well as pink eye with the kids, so I havent been able to get online to respond til now. The IEP meeting went ok I guess. I didn't get what I wanted but I did get a compromise which is ok with me for now, until I get a get a better idea and some backup on how things should be handled and what the school is required to do. My sons Reg. Ed. teacher pleaded with me to give it a chance to see if they can make progress their way, which is 30 minutes each day a Spec. Ed teacher will come in during Language Arts time to aid him in the reg classroom work, since this is his area of weakness. I told them ok I will give them a chance but ,they only have until the end of this grading period. Then at the end of the grading period we will have another IEP meeting to see what needs to be done. I have required that they have to prove to me that he is keeping up with the class. I refused to sign the IEP , and only agreed to sign the revisal with my requirements on it. During this time I plan to have him seen by a new doctor and have new evals done privately to see where he is now acedemically. Hopefully by the next IEP i will have a better idea of what i need to do, and paperwork from the evals, and advice of the doc to back me up.

Autismskat
10-21-2005, 12:08 PM
Well at least your son's teacher wants to make things right. Good for you! Stick to your guns though. Make sure you micro manage your sons education, so he can get the most out of the services. I know what your going through, I have an IEP meeting on monday the 24th. And its a triannual so I'm going to be tough as I can be because my son needs assisted technology to use at home, and everytime I've brought it up in the past, I've been denied because the IEP teem said it would be too much and my son wouldn't respond possitively, but now he's 9 yrs old and I feel now he's very ready to start this program. I know I'm rambling. Take care.