View Full Version : Natural Cellular Defense for Treatment in Autism
winteroses
03-04-2006, 04:30 PM
Hi,
My Name is Kelly, Although I do not know anyone with autism I know a little about it. Recently I have been researching more on it because of a revolutionary product has come to my attention through my father in law. He was so excited about it he set my husband and I up to be distributors for it. In general it's main purpose is to remove heavy metals from the body. And in reading testimonials of patients on NCD the parents of some autistic children were seeing dramatic results within 3 weeks of their child taking NCD daily. My own excitement about a product that can do this and kill epithelial cancers especially when this world has become so toxic in the last century is enough drive for me to try to reach as many people as I can, especially when I see western medicines limitations not sufficient enough to save millions of people. I hope someone finds this information helpful and uses their own curiosity to investigate it further as most people will trust the testimonials of their own support groups in life. As far as I know there may not be any straight forward information on the website in regards to Autism or cancer as most of the testimonials I read come through my email and I think the website has to be really clear on not claiming any product will cure anything. So if you are interested you can buy it from the website and do your own investigation on line ( I use google) or email me and I can forward you what information and testimonials I have.
I wish you all the best in this journey !
Kelly Roske
onelovers@peacemail.com
http://www.mywaiora.com/524171
StrictNon-Confo
03-04-2006, 10:57 PM
To me, it seems the only reason you posted here is to make money. I'll let the admin/owner of this site decide what to do with you and your sales pitch, but seeing as you don't know anyone on the spectrum, I find it unlikely that you've actually seen what happens in person to anyone using this ....whatever.
Hi,
My Name is Kelly, Although I do not know anyone with autism I know a little about it. Recently I have been researching more on it because of a revolutionary product has come to my attention through my father in law. He was so excited about it he set my husband and I up to be distributors for it. In general it's main purpose is to remove heavy metals from the body. And in reading testimonials of patients on NCD the parents of some autistic children were seeing dramatic results within 3 weeks of their child taking NCD daily. My own excitement about a product that can do this and kill epithelial cancers especially when this world has become so toxic in the last century is enough drive for me to try to reach as many people as I can, especially when I see western medicines limitations not sufficient enough to save millions of people. I hope someone finds this information helpful and uses their own curiosity to investigate it further as most people will trust the testimonials of their own support groups in life. As far as I know there may not be any straight forward information on the website in regards to Autism or cancer as most of the testimonials I read come through my email and I think the website has to be really clear on not claiming any product will cure anything. So if you are interested you can buy it from the website and do your own investigation on line ( I use google) or email me and I can forward you what information and testimonials I have.
I wish you all the best in this journey !
Kelly Roske
onelovers@peacemail.com
http://www.mywaiora.com/524171
winteroses
03-05-2006, 09:55 AM
I Understand the way you al would feel, but none of you know ME.... i have lived of f $500 a month with 3 kids for years and have an opportunity to make some more money by promoting a product I believe in and wish that people who can be helped by it be made aware of it, I truly dislike selling things except if the product"sells itself" that's why I suggested anyone interested do their own research or contact me for any information I may have, the only word of mouth info I have at the moment is from my husband who said that the "tics" were stopping after 3 weeks on NCD. I can't imagine why anyone wouldn't be open to trying something new. This NCD is made from volcanic ash and in general I only use Organic products and food in my house, I have always educated myself on how to care for my children instead of using western medicine. I understand why everyone would think I'm just trying to sell something, but wouldn't everyone want to make money from doing something they love ? I'm sharing this information equally, yes I need to make some funds and how beautiful that if at the same time peoples lives could be helped by this product especially if you have cancer and are dying... this product removes cancer from stage 4 patients in 3-4 weeks...these people were dying and now they have a chance, and cancer has proliferated so intensly because of the manufacturing of chemicals to put on our food when it's grown and in the soils and in processing of it, that's why the instances of cancer are soo high now, And from what I've read on Autism, they're finding that it's the heavy metal toxicity in the childs system thats causing the symptoms, along with diet . NCD's removing the heavy metals causes the symptoms to diminish. It's only up to you, I thought people would be excited to be informed of a product that does this especially when they're more than likely not being given this option through their doctor. I truly wish you all the best,
Kelly O :-)
Lisa S
03-05-2006, 03:28 PM
Hi Kelly,
I know you wish us all the best and I completely respect your right to earn a living, but when you say,
I'm sharing this information equally, yes I need to make some funds and how beautiful that if at the same time peoples lives could be helped by this product especially if you have cancer and are dying... this product removes cancer from stage 4 patients in 3-4 weeks...these people were dying and now they have a chance,
I wonder if you have any clinical double blind controlled studies to confirm this.
If so, it would be good to show them to us because I know someone with inoperable metastatic kidney cancer who has tried experimental drugs without success and he is dying right now.
If not, please understand that desperate parents of autistic children have seen many people who made outlandish promises who were essentially snake-oil salesmen and so you are likely to get tarred with the same brush.
Lisa
Personally, I'm giving this a thumbs down. A pill form of chelation -- cures cancer? My wife nursed in an oncology practice for a few years, I think it a pretty dangerous claim to make for curing stage 4 patients. "Stage 4" can mean a lot of different things... one question would have to be what kind of cancer? As with many supplements, the spiel on the "wonder drug" does not have to be very truthful and/or reliable. Sure it might not kill you... but I do not believe its benefits either. You are wrong in assuming ALL or MOST people within the spectrum of Autism are victim of some heavy metal poisoning.
As a parent of an child with severe autism for the almost 12 years now... I could give you a laundry list of garbage and/or wonder drugs I have seen or been told about. My child is not a science project either... so no I will not be trying zeolites extracted from volcanic ash. The fact is there are people out there who want to make money. Unfortunately, marketing to people desperate for a cure is easy to do. I.E. Cancer, Heart Disease, Hair Loss, Aging and the list goes on.
You will also find that not all parents of autistic children are looking for a cure. If this product had the backing to prove what it claimed and I did have a child I knew to be poisoned with heavy metals... then I might consider it.
As of now... I cannot and will not support this drug. I am not God, so I am subject to being wrong... but I don't think I am wrong here.
(I will leave this post up for informational purposes, winteroses please do not repost another advertisement)
winteroses
03-06-2006, 09:43 AM
Dave, If you don't want me posting anymore on here I will respect that, but to answer your question 85%of cancers are epithelial, these are the ones affected by NCD. And as far as your son being a science experiment I am not saying that at all, I really want to see people helped by what I believe is an amazing product, I would rather people buy it from the Home website than mine if their fear is that I'm just trying to sell something. I really can't make anyone trust me or know who I am and how much I care for the healing of this planet. I apologize for any offense I have caused anyone and may be contacted via email as I will not post anymore after this.
onelovers@peacemail.com
I've copied and pasted some information here on NCD and Cancer and Autism for Lisa, I apologize for the length of this post. The FDA approved NCD for immediate sale because of it's "miraculous" ability to remove cancers and heavy metals from the body .
Here is some info I found on Autism and NCD:
There is a new product on the market composed of a water-soluble mineral called Zeolite. The mineral is formed from volcanic lava and ash pouring into the ocean giving it a unique honeycomb structure that is negatively charged. It therefore has an affinity for positively charged compounds and heavy metals, particularly mercury, lead, cadmium, and arsenic. Zeolite appears to engulf these metals and remove them from the body. It will also remove nitrosimines which result from ingestion of burned and fried foods. For those on kidney dialysis there may be a build up of aluminum silicate. Since Zeolite can’t be broken down by liver enzymes, it will chelate aluminum as well as the aforementioned heavy metals. Because it chelates aluminum, there may be implications for those with Alzheimers and Autism.
This link has alot of direct info on NCD and some testimonials : http://www.visionarieslab.com/Waiora.htm
Natural Cellular Defense removes heavy metals,
particularly lead, mercury, cadmium, and arsenic, all of which are associated with neurological disorders such as autism, Alzheimer’s disease and dementia.
In response to Lisa here is a testimonial from a patient with Lung cancer:
TESTIMONIAL ON MALIGNANT MESOTHELIOMA--LUNG CANCER
On Oct. 14, I was diagnosed with Malignant Mesothelioma* lung cancer caused from Asbestos in the lung. I had it in both lungs so surgery was not an option for treatment and this type of cancer doesnâ•˙t respond to Chemo or Radiation treatment. I was told I was in the 4th stage and when I asked the Doctor how many stages there were he told me there were four. Thatâ•˙s basically a death sentence for me.
After all testing was completed, CT scan, Lab work, Tissue biopsy, and a PET scan, I was told by the Oncologist that there was nothing he could do for me and he referred me back to my Medical doctor for the final care.
On Oct. 31, I started taking ╲Natural Cellular Defense╡ 15 drops 3 times a day. The second day of my taking NCD I started to have different sensations in the tumor on my back that was protruding though the chest wall. Sensations like a numbness, to jelly-like when I walked, to bee stings and painful, to a stretching feeling at the tumor, each day it was a different feeling.
After two weeks on the NCD a tumor in my upper abdomen which was about the size of a ping-pong ball was now the size of a marble. In the third week of NCD that tumor could not be found and the tumor on my back was almost gone. At the time of my appointment with the Oncologist the tumor mass on my back could not be found.
.....On Dec. 7, I had a follow up CT scan done and it confirmed that the two tumors were gone. Some were smaller in the lung and one was slightly bigger.
I have increased my times I take the NCD to every 4 hours, 24 hours a day. The new tumors leave the body first, the older more established tumors go last. It is imperative that the blood circulation be increased so that the NCD can reach all the tumor cells. I am vigorously exercising more and more to accomplish this.
Larry Benjamin, Jemison, Alabama, Dec. 2005
Blessing to ALL of you
Kelly
treebuddy
03-21-2006, 07:04 AM
Personally, I'm giving this a thumbs down. A pill form of chelation -- cures cancer?
Zeolite is not a true "chelation therapy". Anyone interested in this post should do the necessary research before buying just any "Zeolite" product. The form of zeolite that winteroses is refering to is a liquid form.
so no I will not be trying zeolites extracted from volcanic ash.
They are actually extracted from blue-green algae.
Unfortunately, marketing to people desperate for a cure is easy to do. I.E. Cancer, Heart Disease, Hair Loss, Aging and the list goes on.
The inventor was desperate for a cure as well. His wife had died of cancer. This does not mean that this product can be claimed as a cancer cure, as it is not FDA approved as such. In my experience, people are so desperate because they are being failed by their medical doctors and their only option left is to search for alternative therapies. This is not generally a dangerous option, but there are many "snake oils" out there that give alternative treatments a bad name.
As for double blind studies, these are needed for the synthetic drugs that pharmaceutical roll out because these CAN harm you.
In the beginning I was just as suspect as anyone, I am not anymore. I commend winteroses on her choice to spread the word, but she does need to realize that she must be careful as to the claims she makes; I as well as many people that I personally know who have had real success with this product do not want to see it shut down by the FDA :(
lacey@alex
04-01-2006, 11:01 PM
#1 You Have No Experience With Autism Nor Has It Touched Your Life In Any Way
#2 This Is Not The Place To Advertise Your Product
#3 There Are New Parents On This Website Looking For Support And Honest Answers About There Children
Your Giving False Hope.
#4 It's Like Those Websites That Say Do This And Your Child Will Be Cured From Autism. I Wish. Please Go Some Place Else. Good Luck.
DeclanPatrick
04-03-2006, 07:46 PM
Hello everyone,
On the subject of Natural Cellular Defense may I suggest you do a little research into this product. WinterRoses there was clearly LOVE in your posting, however when LOVE gets mixed with FINANCIAL GAIN then unfortunately in most minds this equals SNAKE OIL. Sorry, but that is just the world we live in, people have been deceived too many times and their trust levels are low.
Now, I know NCD is far from snake oil I have been researching and promoting it for many many months. I am disappointed in the amount of studies the company has performed as they are reported to be making $3 million per month, in only 7 short months. However with the FDA starting to prick up their ears, they need to stay 3 steps behind, going toe to toe with those guys spells only one thing.
NCD is not a CURE for cancer or anything else for that matter, it is illegal for you to state this and I would be very careful because if the authorities catch up with you, you could get into hot water - please eliminate that statement from your approach. If you look CLEARLY at your Distributor Agreement you will also see that your CLAIMS are your responsibility not Waiora's. So be careful they will not back up anything you claim. You are on your own.
Yes patent # 6,288,045 does state that the Epithelial Cell Cancer Drugkills 100% of Epithelial Cell cancers in 72 hours and YES NCD is protected by this patented process, but NCD is a DIETARY SUPPLEMENT and the claim of cancer cure CANNOT BE MADE. Look how many times Waiora mention cancer on their site....NEVER.
As far as Autism goes NCD can be extremely helpful and has shown in testing (anecdotal) to help children eliminate mercury and slowly symptoms can change for the better. If the child was affected in utero however, there is little NCD or anything else can do.
We need education from the grassroots up - mothers need to know their children are born TOXIC - Mercury Amalgam fillings, Fish, Thimerosal and the Industrial smoke stacks are our biggest mercury producers and can damage a childs brain enough to cause Autism.
WE NEED TO ELIMINATE THE CAUSE. Not wait until our children get sick and then look for a cure. Fortunately, my two daughters are not autistic after their vaccinations, (obviously I know more now than then) but I am still angry that my fellow humans are affected by this needless disease.
In the 80's there was a 1 in 25,000 of autism now it is 1 in 150, an epidemic you could say. TOTALLY preventable in my opinion.
I work with a breath of fresh air called Dr Lyn Hanshew (bio below), she is very well educated in toxicity and has treated hundreds of people with autism, ADD/HD, cancer, Fibromyagia etc.....(toxicity related dieseases) for 20 years, she is outspoken and has testified before the EPA demanding a ban on the "legal" practice of allowing toxic heavy metals to be "recycled" in our fertilizer and food supply.
She has worked with NCD for several months and is excited that it can remove toxins from the system more effectively than EDTA & DMPS and is non-toxic.
Yes it is MLM, another no no for some, but it cannot be overlooked because of the way it is marketed. It is way too useful for that.
We arrange conference calls with Dr Hanshew periodically and she comes on and gives us a very detailed overview of how toxins affect our bodies, where they come from and what we can do prevent disease from manifesting. Working with NCD is now paramount in her goal of educating the masses in PREVENTION.
Using her time most effectively means personal consulations are kept to a minimum, however I will post my email address and if you send me your email address and ask to be added to my mailing list I will be sure to alert you when Dr Hanshew is giving her conference call lectures and Q&A's.
I hope this helps some of you who were a little put out by the original approach. I believe Winteroses to be a kind spirited individual with a main focus on helping people, just a little over zealous in her approach.
Do a little due diligence it may just match what you are looking for.
Healthy Regards,
Declan Owens
206.505.7887
declanpatrick@comcast.net
Short Bio - Lyn Hanshew, M.D
Dr. Hanshew was born in Yakima, WA. She was a participant in
the first Junior Admit Program to Seattle University in 1972, majoring
in Biology. She graduated with Honors from Drake University in
Des Moines, IA in 1976 with a B.A. in Biology. In 1982, Dr. Hanshew
graduated with Honors from Drake University with a Master of Arts
Degree in Genetics and Microbiology.
During this time, Dr. Hanshew also worked full-time as a research Scientist
for Syntex Laboratories in Vaccine research and development. She then
applied to the University of Washington School of Medicine and was accepted.
She graduated in 1987 with Honors, completing the arduous four-year program
in only three years. She was the recipient of the prestigious Excellence in
Physical and Medical Rehabilitation Award as a second year medical student
and the Merck Manual Award in recognition of her outstanding academic and
clerkship performance in graduating with Honors in only three years.
Dr. Hanshew attended the Swedish Hospital Medical Center Family Medicine
Residency Program from 1987-1989. She has practiced medicine on the eastside
of Seattle since 1989. She is Board-Certified in Family Medicine and Bariatric
Medicine (Weight Management). She has achieved specialized training in Anti-Aging
Medicine, Natural Hormone Replacement and Environmental Toxicity issues
relating to the exponential rise in the incidence and successful treatment of Autism,
Fibromyalgia , ADD, Chronic Fatigue, Multiple Sclerosis, Obesity, Anxiety, Depression
and Cancer. She is a national recognized speaker, published author, and has testified
before the EPA demanding a ban on the "legal" practice of allowing toxic heavy metals
to be "recycled" in our fertilizer and food supply.
kabukimom
05-04-2006, 07:24 AM
Although my daughter does not have autism (yet?), she does have Kabuki Syndrome (KS), a genetic disorder with global impact, including cognitive and general developmental delays. Many children with KS also have an ASD diagnosis. She is 4.
My daughter displays some symptoms similar to autism, like averting eyes, poor communication, and "a world of her own", although some of those have improved recently. You can read about both her and my experience with NCD at http://zeolitetest.blogspot.com/ .
I can't say it's been a "miraculous" improvement, but I am cautiously optimistic that the improvements will continue and hopefully accelerate. She has quite a ways to go to catch up to her peers. Her speech therapist has been particularly impressed with her improvement over the last month.
I did a lot of research into NCD before trying it with Demi. The "can't hurt you" part was important, since I certainly didn't want to risk making things any worse. Obviously, this is just my experience with my daughter. Every child is different and reacts differently to treatments.
AllentownMike
05-05-2006, 03:23 PM
I just purchased NCD for personal use to detox my system. I have a six year old autistic brother who talks very llittle and has constant problems with stimming (Extended periods of uncontrolled stimmulation). If I feel NCD is working to make me feel better than I would be willing to propose to my family that this is an approach that could be fruitful in making progress with my brother. I spent several hours reading about NCD and have yet to stumble upon anything (on the web) that leads me believe that NCD is a sham, as to its effects on Autism, I will let the blog know once my brother is on it and see if his condition improves. Since heavy metals are one of the suspected causes of autism, it is only logical to believe that NCD may work, an article linked here http://www.health-reports.com/RobertKennedyJrarticle.html explains one of the theories behind heavy metals and autism. If this drug works as advertised, there should be at least some improvement. Of course, i will be the guinea pig before I ever recommend my family use this on my brother.
I will let everyone know how this is coming along.
Lisa S
05-05-2006, 03:37 PM
Good luck, AllentownMike with being the guinea pig for your little brother. If you don't mind me asking, how old are you? What problems are you experiencing that you hope NCD will cure? Sometimes stimming is a self-calming activity, so not all stimming is bad. Is your little brother in speech therapy? A speech therapist can help his speech and can assist his family to help him with it as well.
Sailor
05-16-2006, 05:31 PM
I appreciate the cautionary words spoken to winterroses and to any NCD distributor who makes ANY claims related to ANY disease or medical condition. To make such statements is unproductive (or worse) to those who you are attempting to introduce to this product. It rightly closes minds and causes reasonable people to dismiss the product all together.
There are plenty of people with autistic children who are witnessing benefits. Let them talk about there own experinces. See yahoo group: AutismNCD if you are a parent and want to hear discussions with other parents.
As far as what is known through studies:
o there are over 100 studies, mostly animal and some human, on pubmed for clinoptilolite , the specific type of zeolite used in NCD.
o zeolite is rated as a food supplement by the FDA. This means the FDA thinks zeolite is a quite safe, and it is on the FDA GRAS list ("Generally Recognized as Safe"). Most products found OTC in a drugstore cannot say this.
o There have been 5 independent, double blind, placebo-controlled studies completed so far on NCD Zeolite. This is ALOT for the few months that it has been in the market. Since these studies are being written up for publication in peer-reviewed journals, it is likely to be 6-12 months before they will be published. The peer review process takes a long time.
o There are several more studies either underway or to be beginning soon.
o The company with the exclusive for marketing NCD never thought about autism as a target application of the product. It was only after a large number of anecdotal reports that it has been recognized that it may hold some value here.
Over the last few months, I have personally been working nearly full-time on designing a Randomized, Double-blind, placebo-controlled study on NCD & autism. At this point, several degreed professionals in the field have signed on as volunteers to participate as investigators. This includes one well published investigator in autism and heavy metal chelation. He started off as quite skeptical of any possible value. Now, as a result of his own investigation and conversations with the independent investigator involved with the some of the completed NCD studies, has concluded that the completed trail results are compelling.
To learn more about the prospective clinical trial, visit:
www.ZeoliteAutismStudy.com - be sure to register if you want to be informed about upcoming study activities or you wish to listen to excellent audios that discuss the studies that have been done, and the specific experiences of one DAN doctor.
To all distributors: Remember. You may make no claims. Any experience by any individual does not mean it will be effective for anyone else. What you can do, is responsibly refer to studies, and to speak to your own experiences.
Be respectful. There is probably very few more challenging lives that a parent could have then to care for an autistic child (or two or three since sometimes the problem runs in families). These parents deserve our respect, admiration and compassion. If you choose to become interested in the challenges of autism, then invest the time and energy to become educated about the situation PRIOR to posting reported solutions.
Respectfully,
Forrist Lytehaause
PS. BTW, I am an interested party who has not been personally touched in my immediate family by autism. I found that I had the skills and passon to move ncd and its potential benefits to autism into a solid clinical study, so I chose to take up the challenge. While it is likely to be 12-24 months before our results will be published, it will occur in as timely a fashion as possible.
StrictNon-Confo
05-17-2006, 10:59 PM
If something may potentially have a beneficial effect and it is taken/administered in hopes of that, it stands to reason that it could also potentially have a detrimental effect: is it really fair to use people that have no choice in the matter as lab rats? Especially when they aren't even informed about what they're being given/forced on them, and why?
Just because a limited study seems to suspect that a certain substance isn't likely to cause harm (hence, dietary supplement) as tested by the government doesn't promise that will be true for everyone: after all, there are commercials that state that milk is good for you, but you'd have a hard time convincing someone that's allergic to it that that assertion is true. It's quite common that those on the spectrum react in a different manner to substances (not only those legally declared drugs, but others as well) than the rest of the population does: I know I do. Thus, the statement "it doesn't cause me any problems!" issued by someone else means nothing useful at all.
Let me throw out this thought: if someone decided you were going to start ingesting some substance, and that you had no choice in the matter, and the purpose of it was to try to change who and what you are, wouldn't you be hopping mad, and likely refuse such a thing? Think about that, please, before getting hopes up that something that's "mostly harmless" (quoting from Douglas Adams here) is truly harmless, and perhaps beneficial: everything has a potential and/or real downside, if only what is implied by the act of trying it/forcing it on someone.
Sailor
05-17-2006, 11:59 PM
What???
You speak in gross generalities that have no relevance to the discussion in this thread. Anyone using generalities can build any pretzel logic they want to prove anything or for that matter disprove anything. Nevertheless it is nothing but nonsense.
Your points are meaningless to the NCD specifics and the studies involved.
StrictNon-Confo
05-18-2006, 01:19 AM
Tell your favorite excuse to your unwilling/unknowing lab rats after they suddenly convince you that they were able to fully understand everything that happened to them, but were unable to convince you that they didn't want to be involved.
You, sir, are full of BS in thinking that they won't remember or care what was done to/for them where they didn't have the "right" to refuse it, or speak for their own desires without being overridden. I am on the spectrum, and have an older sister on the spectrum: there are many things that are never forgotten, and this is the sort of thing that leaves permanent footprints in the mind.
What???
You speak in gross generalities that have no relevance to the discussion in this thread. Anyone using generalities can build any pretzel logic they want to prove anything or for that matter disprove anything. Nevertheless it is nothing but nonsense.
Your points are meaningless to the NCD specifics and the studies involved.
kabukimom
06-14-2006, 03:10 PM
StrictNon-Confo,
I appreciate your observations as an adult (?) on the spectrum.
Although you speak in general about the potential downside of any "substance," I suspect you'd agree that you cannot speak specifically for each and every child on the spectrum nor their parents.
As the parent of a child with a disability, I am responsible for seeking out and considering any method (substance, therapy, treatment) which may improve my child's abilities. That does not mean that I'm trying to change my child into someone she is not. I'm trying to make her (and my) future brighter. To that end, I "tried" NCD on MY child, with good results. (See http://zeolitetest.blogspot.com for her experience. )
Many people believe that mercury in vaccines contributes to autism (see http://momsagainstmercury.com ). (I'm not trying to strike a debate; I know many others believe it's not true.) As a point of fact, shown in recent studies, NCD effectively removes mercury from the body. (For more details on NCD, see http://www.zeolitewellness.com )
Each parent must weigh the pros and cons, risks and rewards of any treatment for their children, impaired or not. Refusing every idea just because of the "possibility" of a downside (by your definition, providing the treatment AT ALL is a downside) seems irresponsible. This forum is a great information resource for parents. Each parent can use the information as they see fit for their children.
Sailor
06-14-2006, 07:13 PM
FOR IMMEDIATE RELEASE
6/8/2006
Autism Study on Promising Supplement Approved
Natural Cellular Defense (NCD), a safe, natural, inert mineral supplement has generated many encouraging reports from parents of autistic children. NCD has attracted the interest of some of the leading autism researchers and physicians. A randomized, double-blind, placebo-controlled study designed to evaluate the benefits of NCD Zeolite on Autism Spectrum Disorders was approved by BioMed IRB on June 7, 2006.
San Diego, California - June 7, 2006
BioMed IRB of San Diego, California has approved a clinical trial that seeks to evaluate the benefits of adding a patented supplement, NCD zeolite, to the diet of children diagnosed with Autism Spectrum Disorders. Natural Cellular Defense is purified clinoptilolite, a type of zeolite, suspended in solution. The zeolite is purified using a patented process and named NCD Zeolite™.
This form of zeolite is one of the few negatively charged minerals in nature, and it has a microscopic honeycomb-like crystalline structure of cavities and cages. Animal studies show that they have the ability to attract, trap, bind and remove various heavy metals and toxins such as mercury, lead and arsenic.
The study's eighty autistic children will be divided into two groups. One group is receiving the NCD zeolite and the other the placebo for ninety days. Both groups will be measured using a variety of established instruments for autism diagnosis and treatment evaluation. Further, since other animal and human studies with zeolite have demonstrated the ability for zeolite to remove heavy metals, a portion of the participants will receive a series of urine excretion tests designed to detect levels of heavy metal excretion. If previous studies in adults hold true for these autistic children, the researchers may see excretion rates as high as 10 times over their baseline.
At the end of the ninety day study period, those receiving the placebo will then begin taking the NCD and be tracked for ninety more days.
Two sites have been approved so far. In Plano, Texas, Dr. Seshagiri Rao, a Board Certified Pediatrician is the lead investigator. The second site, in Baton Rouge, Louisiana is lead by Dr. Stephanie Cave. Both sites have begun recruiting for study participants. Visit www.ZeoliteAutismStudy.com to learn how to apply.
Professor James Adams, PhD will conduct the study data analysis. Dr. Adams has previously published studies on the high level of mercury toxicity common in many autistic children. Other studies suggest a possible link between Thirmersol concentration found in many vaccines and the high mercury levels in autistic children.
Contact Forrist Lytehaause for more insights into this topic. Direct line: (503) 699-4925 Email: Coordinator@ZeoliteAutismStudy.com. Other helpful information regarding the study can be found at: www.ZeoliteAutismStudy.com.
For More Information Contact:
Forrist Lytehaause
Coordinator@ZeoliteAutismStudy.com
www.ZeoliteAutismStudy.com
Wembley
06-29-2006, 01:05 AM
Further, since other animal and human studies with zeolite have demonstrated the ability for zeolite to remove heavy metals, a portion of the participants will receive a series of urine excretion tests designed to detect levels of heavy metal excretion. If previous studies in adults hold true for these autistic children, the researchers may see excretion rates as high as 10 times over their baseline.
Please cite the appropriate clinical research indexed on www.pubmed.gov that would support this.
Professor James Adams, PhD will conduct the study data analysis. Dr. Adams has previously published studies on the high level of mercury toxicity common in many autistic children.
Please cite just one of the "studies" that was actually published in a peer-reviewed medical journal indexed on www.pubmed.gov
I'll give you a hint: search www.pubmed.gov for Adams JB Autism - See anything about mercury?
Once you've got those two things squared away, feel free to then provide scientific evidence that
1. mercury even causes autism
2. autistics even have mercury toxicity
3. if you're going to use non-standard methodology for #2, please provide correlative studies that support those methodologies and reference norms.
Wembley
06-29-2006, 02:14 AM
The form of zeolite that winteroses is refering to is a liquid form. They are actually extracted from blue-green algae.
/you lose buzzer
It's clinoptilolite suspended in water, clinoptilolite being a powder and water being a liquid. There is no such thing as liquid clinoptilolite under about 1800 degrees F - it would not be safe to drink at this temperature.
Clinoptilolite comes out of huge mining deposits - not algae.
Wembley
06-29-2006, 02:21 AM
In the 80's there was a 1 in 25,000 of autism now it is 1 in 150, an epidemic you could say. TOTALLY preventable in my opinion.
/you lose buzzer
You'd better brush up on your epidemiology. Educate yourself about the changes in diagnostic critera over the time period you describe, understand diagnostic substitution, and acknowledge increasing awareness and better recognition.
Wembley
06-29-2006, 02:38 AM
I spent several hours reading about NCD and have yet to stumble upon anything (on the web) that leads me believe that NCD is a sham, as to its effects on Autism, I will let the blog know once my brother is on it and see if his condition improves. Since heavy metals are one of the suspected causes of autism, it is only logical to believe that NCD may work...
Suspected does not equal causes it. In fact that's a perfect definition of the opposite of logic, Mike. It's an emotional appeal to popularity - very weak scientifically.
I suspect ice cream cause autism and have just as much science to support that claim as heavy metals.
Wembley
06-29-2006, 02:50 AM
Over the last few months, I have personally been working nearly full-time on designing a Randomized, Double-blind, placebo-controlled study on NCD & autism.
What background do you have at all for personally designing a Double-blind RCT for a dietary supplement for autism?
How about a brief bio on you? Please include:
Graduate and post graduate education.
Research you've published or verifiably coordinated.
All business affiliations for the last 5 years, including business you own.
(So conflict of interest can be ruled out).
DeclanPatrick
07-21-2006, 04:35 AM
Autism is most likely caused by mercury toxicity in the brain.
If a child is born autistic then the brain probably never developed
properly in the womb and treatment for such a patient would be
probably less effective or at least more difficult to see good results.
Vast majority of Autism is developed after a few years, depending
on which straw it was that eventually breaks the camels back.....
Contaminated mothers with amalgam fillings pass this neurotoxin
through the placenta and through the breast milk. In fact over 280
known toxins were found in a random study of 10 womens
umbilical cord blood in 2005.
See http://www.ewg.org/reports/bodyburden2/statement.php
Thimerosal in vaccinations is probably the major cause of the epidemic
that is autism / add / adhd etc.....followed by amalgam fillings, mercury
in fish, down to every breath we take......
This University of Calgary study clearly shows the effect that mercury
has on the Brains Neurons - CLICK HERE (http://commons.ucalgary.ca/showcase/curtains.php?src=http://apollo.ucalgary.ca/mercury/movies/Lor2_QTS_700kb_QD.mov&screenwidth=512&screenheight=400&curtains=no)
ESPECIALLY FOR WEMBLEY - / buzzer you lose.
In this compelling investigation by Action News in Michigan, the question
asked is Does Thimerosal in Vaccinations cause Autism?
Watch the report here: http://www.wxyz.com/cr/cda/player/1,1272,WXYZ_33821_240_180,00.html
The International Academy of Oral Medicine and Toxicology on Amalgam fillings:
http://www.iaomt.org/merc_release.swf
French Study Implicates Heavy Metals & Autism Link
http://www.newscientist.com/article.ns?id=mg19025535.400&feedId=onlinenews
You can find this study here: http://filariane.org/anglais/DOC/MSFINAL.pdf
I am certainly of the opinion that heavy metals especially mercury plays
a major role in the hike in autism cases.
Autistic children are very sensitive so gentle treatments are required...
two things we use with great effect are the Q2 Energy Spa, this quantum
machine increases the overall energy of the individual and allows the bodies
innate ability to heal itself take over.
We are also seeing some tremendous results with the liquid zeolite product
Natural Cellular Defense. This really is a very good product for sequestering
metals from the system in a non-toxic and non-harsh fashion.
We are also in the process of arranging a large European study through
Dr Peter Van derSharr president of the www.ibcmt.com
Again the results of this study, if they match what we are already seeing using the same type of testing here in the states, should basically make redundant EDTA and DMPS & DMSA chelation methods.
Healthy Regards,
Declan Owens
206.505.7887
www.ToxinFreeLifestyle.com
Lisa S
07-21-2006, 12:15 PM
Wembley has asked some very good questions which "Forrist Lytehaause" has not answered yet. I'm still waiting for him to respond.
I have seen several scientific studies that point to autism being genetic.
In the following quote, MZ means Monozygotic or identical twins. DZ means Dizygotic or fraternal twins.
http://www.medscape.com/viewarticle/520013?rss
In the epidemiologic twin studies, the concordance ratio for autism in MZ compared with DZ twins was roughly 10:1. This finding furnished immediate and incontrovertible evidence that autism is a genetic disorder. These studies, carried out in the most rigorous manner, indicate that autism and also ASDs are genetic disorders.
DeclanPatrick
07-21-2006, 01:22 PM
Lisa,
Most children are not born autistic.
In 2005 it was shown that the vast majority of women have a Body Burden with toxins http://www.ewg.org/reports/bodyburden2/statement.php
A study was also introduced by Dr Deitrich Klinghardt on 14-15th January 2006 to 100+ attending Medical Professionals at the annual convention in Seattle, for the Institue of Neurobiology, this showed that there was a direct correalation to the amount of amalgam fillings in a womans mouth and the chances of her child developing autism.
Genetic? But, I don't think so - maybe more to do with TOXIC MOM......why is the medical establishment with all the public outcry about toxins STILL not doing any formal research in this arena.
Just watch this Action News report to see the so called Professional leaders in the field of vaccinations in Michigan. It is truly a disgrace.
http://www.wxyz.com/cr/cda/player/1,...40_180,00.html
Why do people call for Double Blind corrupt studies, what do they prove. The medical world is corrupt and/or very misled, doctors do ZERO independent research in the drugs they push, taking the advice of Big Pharma that the research has already been done. Most take family vacations and golden handshakes from Pharma Reps as a perk for the job they do.....but thats OK because they are doctors....???
Show me the peer reviewed data that claims MERCURY is safe for vaccines?
Show me the peer reviewed data that claims MERCURY is non-toxic and does NOT affect a childs brain?
Wembley will ask questions all day long, but it would matter not if he got all the answers because he is conditioned and only believes in the corrupt medical establishment.
Heck there are even some prominent scientists trying to disprove what won Robin Warren and Barry Marshall the Nobel Prize for Medicine. They showed the bacterium Helicobacter pylori plays a key role in the development of both stomach and intestinal ulcers.
People like Wembley would fall under this "trying to disprove" category. I am not saying he is a bad person, his motive might be pure but he is conditioned none the less. Maybe he is just sitting in some office working for the spin doctors, who knows. Maybe a bio on him might be enlightening.
These are typical spin doctor questions:
How about a brief bio on you? Please include:
Graduate and post graduate education.
In other words: Prove to me you are a conditioned robot and regurgitate what Med School taught you, because if you step outside the box we will take away your license to practice and call you a crazy quack.
Research you've published or verifiably coordinated.
All business affiliations for the last 5 years, including business you own.
Talk about a Police State. When you have supposed General members of the public asking questions like these what chance have we got. Why not tell us every bad thought you have ever had while you are at it, just so we can rule out that you are not some quack, with bazzar thoughts of healing the world naturally when all our very expensive money making drugs are keeping them sick and in need of more drugs......
(So conflict of interest can be ruled out). Wembley - please don't talk about conflict of interest and the medical establishment in the same sentence, I only have about 50 years left on earth and it would still not be enough time to document all of it......
As Forrist Lytehaause stated earlier "There are plenty of people with autistic children who are witnessing benefits. Let them talk about there own experiences."
It is time to take control of your own health, any logical thinker can see that handing this job over to the authorities has NOT worked. We are more sick now than ever in history. Ask questions and seek answers but for Gods sake don't just believe everything a white coat tells you. Just because you have 6Degree's and 20 Published articles, it does not mean you know everthing and it certainly does not mean you know more than an independent researcher who has put years into seeking the truth.
Everyone do your own due diligence and use what works best for you.
Healthy Regards,
Declan Owens
www.ToxinFreeLifestyle.com
Lisa S
07-21-2006, 03:06 PM
Lisa,
Most children are not born autistic.
In 2005 it was shown that the vast majority of women have a Body Burden with toxins http://www.ewg.org/reports/bodyburden2/statement.php
How could you possibly know whether a child is born autistic or not, when it is impossible to test a newborn for autism? You cite lots of references from someone called the Environmental Working Group, not references from accepted peer-reviewed medical journals. You call them "Double Blind corrupt studies", which indicates a bias against the scientific method. Maybe the claims you and "Forrist Lytehaause" are making for this product you are trying to sell won't stand up to scientific scrutiny. I think that you and "Forrist Lytehaause" are trying to sell us this NCD, and I don't trust snake oil salesmen to tell the unvarnished truth about anything that affects their income.
DeclanPatrick
07-21-2006, 03:39 PM
Lisa,
I am not selling or trying to sell you anything. I am simply passing on my observations. And yes I have a bias toward the current scientific method because it IS corrupt. That is not in question. Off course not all are corrupt but there are enough who just believe all they read in medical journals to allow the corruption to be easily spread.
Doctors who do not do their due diligence on drugs and accept Big Pharma Reps literature as "unvarnished truth" are basically Snake Oil Salesmen in white coats with medical degrees. The sales of these products affect THEIR income greatly.....how is this any different....however you trust them with your life.
It is not about "Scientific Scrutiny" what does that actually mean....Big Pharma have it all sewn up, only drugs can "Cure" disease but not one drug does.....Dietary Supplements are peddled by snake oil salesmen who know nothing and their studies and findings are unscientific.....heck you can't even claim water cures dehydration.
You probably still have not even watched the Action News article, I will post it again..... http://www.wxyz.com/cr/cda/player/1,...40_180,00.html
are these really the type of people you would trust with your childs health.
They actually LIED to the reporter and then tried to justify the lie.
Lisa, most often, and I challenge you to survey your contacts with autistic children, the parents claim that their child was "normal" until .....and usually can rhyme off the demise in detail, very often it is closely matched with their vaccination schedule.
You may not want to notice this pattern but it is a very important part of the autism puzzle, and you cannot find the answers without all the pieces.
Open your mind, do your due diligence and seek answers.
Healthy Regards,
Declan Owens
autmom
07-28-2006, 01:03 PM
Many types of chelation should not be done on people who have amalgams....so I was wondering...
Is NCD safe for people who have amalgams..?
DeclanPatrick
07-28-2006, 01:30 PM
Hi Autmom
Unlike chelator DMPS where it would be very dangerous to take if you had mercury amalgams. NCD is totally 100% Safe to use with amalgams.
For more information on this see www.NCDTest.com
Healthy Regards,
Declan Owens
Wembley
08-03-2006, 02:02 AM
Autism is most likely caused by mercury toxicity in the brain.
Any science to go with that?
If a child is born autistic then the brain probably never developed
properly in the womb and treatment for such a patient would be
probably less effective or at least more difficult to see good results.
Vast majority of Autism is developed after a few years, depending
on which straw it was that eventually breaks the camels back.....
Any science to go with that?
Contaminated mothers with amalgam fillings pass this neurotoxin
through the placenta and through the breast milk. In fact over 280
known toxins were found in a random study of 10 womens
umbilical cord blood in 2005.
See http://www.ewg.org/reports/bodyburden2/statement.php
Mercury is absolutely passed to a fetus or breastfed baby. How much ethylmercury or elemental is toxic?
Please provide citations.
Thimerosal in vaccinations is probably the major cause of the epidemic
that is autism / add / adhd etc.....followed by amalgam fillings, mercury
in fish, down to every breath we take......
Any science to go with that?
This University of Calgary study clearly shows the effect that mercury
has on the Brains Neurons - CLICK HERE
I don't have quicktime, can you provide a pubmed citation.
ESPECIALLY FOR WEMBLEY - / buzzer you lose.
That's a pretty weak buzzer.
In this compelling investigation by Action News in Michigan, the question
asked is Does Thimerosal in Vaccinations cause Autism?
Watch the report here: http://www.wxyz.com/cr/cda/player/1,...40_180,00.html
TV shows, Magazine Articles, Horoscopes, and other drivel don't count.
The International Academy of Oral Medicine and Toxicology on Amalgam fillings:
http://www.iaomt.org/merc_release.swf
Peer-reviewed science please.
French Study Implicates Heavy Metals & Autism Link
http://www.newscientist.com/article....dId=onlinenews
Do you know what creatinine is, or why ratioing to it can be a confounding variable?
You can find this study here: http://filariane.org/anglais/DOC/MSFINAL.pdf
I am certainly of the opinion that heavy metals especially mercury plays
a major role in the hike in autism cases.
So what? Got any science to go with your opinion?
Tell us about the "hike" and what you know about epidemiology.
Autistic children are very sensitive so gentle treatments are required...
two things we use with great effect are the Q2 Energy Spa, this quantum
machine increases the overall energy of the individual and allows the bodies
innate ability to heal itself take over.
WTF? Why not chanting, or psychics?
We are also seeing some tremendous results with the liquid zeolite product
Natural Cellular Defense. This really is a very good product for sequestering
metals from the system in a non-toxic and non-harsh fashion.
If you're referring to metals in the digestive track, no argument.
We are also in the process of arranging a large European study through
Dr Peter Van derSharr president of the www.ibcmt.com
So what?
Again the results of this study, if they match what we are already seeing using the same type of testing here in the states, should basically make redundant EDTA and DMPS & DMSA chelation methods.
None of which cross the blood brain barrier to effectively remove mercury.
Wembley
08-03-2006, 02:18 AM
Most children are not born autistic.
Any science to go with that?
In 2005 it was shown that the vast majority of women have a Body Burden with toxins http://www.ewg.org/reports/bodyburden2/statement.php
So?
A study was also introduced by Dr Deitrich Klinghardt on 14-15th January 2006 to 100+ attending Medical Professionals at the annual convention in Seattle, for the Institue of Neurobiology, this showed that there was a direct correalation to the amount of amalgam fillings in a womans mouth and the chances of her child developing autism.
Is it peer-reviewed and published. Are you familiar with correlation doesn't equal causation?
Genetic? But, I don't think so - maybe more to do with TOXIC MOM......why is the medical establishment with all the public outcry about toxins STILL not doing any formal research in this arena.
There's lots of research going on. Did you read any of the abstracts from IMFAR this year?
Just watch this Action News report to see the so called Professional leaders in the field of vaccinations in Michigan. It is truly a disgrace.
http://www.wxyz.com/cr/cda/player/1,...40_180,00.html
TV shows don't count.
Why do people call for Double Blind corrupt studies, what do they prove. The medical world is corrupt and/or very misled, doctors do ZERO independent research in the drugs they push, taking the advice of Big Pharma that the research has already been done. Most take family vacations and golden handshakes from Pharma Reps as a perk for the job they do.....but thats OK because they are doctors....???
Right.
Show me the peer reviewed data that claims MERCURY is safe for vaccines?
Show me the peer reviewed data that claims MERCURY is non-toxic and does NOT affect a childs brain?
You make the claim that vaccines cause autism, you bring the proof.
You make the claim that mercury is neurotoxic and affects the child's brain, you bring the proof.
You could be right, show us that you are - with real scientific evidence, not TV shows.
Wembley will ask questions all day long, but it would matter not if he got all the answers because he is conditioned and only believes in the corrupt medical establishment.
I don't "believe" as a matter of method. I think and evaluate available evidence. Bring some, I'll look at it.
Heck there are even some prominent scientists trying to disprove what won Robin Warren and Barry Marshall the Nobel Prize for Medicine. They showed the bacterium Helicobacter pylori plays a key role in the development of both stomach and intestinal ulcers.
So what?
People like Wembley would fall under this "trying to disprove" category. I am not saying he is a bad person, his motive might be pure but he is conditioned none the less. Maybe he is just sitting in some office working for the spin doctors, who knows. Maybe a bio on him might be enlightening.
I'm not out to disprove anything. I'm asking you to prove what YOU claim.
These are typical spin doctor questions:
How about a brief bio on you? Please include:
Graduate and post graduate education.
In other words: Prove to me you are a conditioned robot and regurgitate what Med School taught you, because if you step outside the box we will take away your license to practice and call you a crazy quack.
I'm interested to see if Forrist will share about Marlana.org and his other "businesses", so parents can see who their dealing with.
Research you've published or verifiably coordinated.
All business affiliations for the last 5 years, including business you own.
Talk about a Police State. When you have supposed General members of the public asking questions like these what chance have we got. Why not tell us every bad thought you have ever had while you are at it, just so we can rule out that you are not some quack, with bazzar thoughts of healing the world naturally when all our very expensive money making drugs are keeping them sick and in need of more drugs......
(So conflict of interest can be ruled out). Wembley - please don't talk about conflict of interest and the medical establishment in the same sentence, I only have about 50 years left on earth and it would still not be enough time to document all of it......
A little conspiracy theory issues?
As Forrist Lytehaause stated earlier "There are plenty of people with autistic children who are witnessing benefits. Let them talk about there own experiences."
So what? Anyone can make those claims.
It is time to take control of your own health, any logical thinker can see that handing this job over to the authorities has NOT worked. We are more sick now than ever in history.
Right, you obviously know medicine.
Ask questions and seek answers but for Gods sake don't just believe everything a white coat tells you. Just because you have 6Degree's and 20 Published articles, it does not mean you know everthing and it certainly does not mean you know more than an independent researcher who has put years into seeking the truth.
You're right it doesn't mean someone knows more. Perhaps Forrist can show us what he does know and answer the original questions. Maybe you could take a shot at it.
Everyone do your own due diligence and use what works best for you.
Absolutely.
Wembley
08-03-2006, 02:29 AM
I am not selling or trying to sell you anything. I am simply passing on my observations. And yes I have a bias toward the current scientific method because it IS corrupt. That is not in question. Off course not all are corrupt but there are enough who just believe all they read in medical journals to allow the corruption to be easily spread.
Got a better method for arriving at determination of reality or the long run?
Please bring proof that it's better with you.
Doctors who do not do their due diligence on drugs and accept Big Pharma Reps literature as "unvarnished truth" are basically Snake Oil Salesmen in white coats with medical degrees. The sales of these products affect THEIR income greatly.....how is this any different....however you trust them with your life.
I don't trust doctors just because they are doctors. I do the research. I ask lots of questions. I require proof.
It is not about "Scientific Scrutiny" what does that actually mean....Big Pharma have it all sewn up, only drugs can "Cure" disease but not one drug does.....Dietary Supplements are peddled by snake oil salesmen who know nothing and their studies and findings are unscientific.....heck you can't even claim water cures dehydration.
More conspiracy ranting. Poor snake oil salesmen have it so rough. Wah Wah.
You probably still have not even watched the Action News article, I will post it again..... http://www.wxyz.com/cr/cda/player/1,...40_180,00.html
are these really the type of people you would trust with your childs health.
TV shows are irrelevant to the efficacy of NCD Zeolite for Autism.
They actually LIED to the reporter and then tried to justify the lie.
Lisa, most often, and I challenge you to survey your contacts with autistic children, the parents claim that their child was "normal" until .....and usually can rhyme off the demise in detail, very often it is closely matched with their vaccination schedule.
You don't say. Let's see most kids are vaccinated in early childhood, and autism is ususally detected in early childhood. Eureka! It's the vaccines! Now bring some science that supports that.
You may not want to notice this pattern but it is a very important part of the autism puzzle, and you cannot find the answers without all the pieces.
You want to notice a pattern so badly, you'll do anything to explain it, even if it's not supported by the science at all.
Open your mind, do your due diligence and seek answers.
You too. Go back and answer the original questions. I'll give you a hint... there is a new Jim Adams study out (even though it was originally written in 2003). And it actually is about mercury, but uh oh, it shows that autistics have mercury levels similar to controls. Good luck, you're going to need it.
Wembley
08-03-2006, 03:19 AM
You know Declan Patrick,
I want to make this as easy as possible for you, so I'll list the things that would benefit from your explanation here:
"If previous studies in adults hold true for these autistic children, the researchers may see excretion rates as high as 10 times over their baseline."
1. Please cite the appropriate clinical research indexed on www.pubmed.gov that would support this.
"Professor James Adams, PhD will conduct the study data analysis. Dr. Adams has previously published studies on the high level of mercury toxicity common in many autistic children."
2 .Please cite just one of the "studies" that was actually published in a peer-reviewed medical journal indexed on www.pubmed.gov
I'll give you a hint: search www.pubmed.gov for Adams JB Autism - See anything about mercury?
3. When you find the new study that does comment about mercury, please explain the findings and how they may relate to NCD Zeolite.
When Declan Patrick has adressed those three items, he/she will now explain the science and provide relevant citations as indexed on www.pubmed.gov that:
4. Mercury even causes autism
5. Autistics even have mercury toxicity
6. If non-standard methodology is used for #5, please provide correlative studies that support those methodologies and reference norms.
When Declan Patrick has addressed those additional items, he/she will then explain exactly what is in NCD Zeolite referencing all three of the following items:
7. The supplement fact sheet
8. The Waiora NCD Zeolite safety letter
9. The letter to distributors describing the impurities in NCD Zeolite
You can skip the bio for Forrist Lytehaause (love the cool neo-spiritual name)
But, when Declan Patrick is finished with the first 9 items, he/she will then explain (with appropriate scientific citations):
10. How NCD Zeolite crosses the intestinal wall AND the blood brain barrier to remove mercury.
(Optional non-scientific) After that, Declan Patrick will explain:
11. How NCD Zeolite is marketed.
12. Whether or not the zeolite autism study is a Waiora-approved clinical trial, and if not why not.
13. An educated guess as to the cost of producing 1 oz. micronized clinoptilolite.
You can use raw materials pricing for palletized bags rather than railcar for this one if you want.
DeclanPatrick
08-29-2006, 07:23 PM
OK last time.......Wembly.......let me make this easy for you......
WATCH THIS INVESTIGATION
http://www.wxyz.com/cr/cda/player/1,1272,WXYZ_33821_240_180,00.html
and read the research papers from Dr Geier
I have no faith in the established medical establishment and as Dr Boyd Haley at the University of Kentucky claims about current mercury autism studies "If you put junk in you get junk out"
Have your Professor James Adams PhD contact both Dr Haley & Dr Geier hopefully then we can start to get to the bottom of this medical tragedy.
Healthy Regards,
Declan Owens
Sailor
08-30-2006, 04:25 AM
http://www.asmalldoseof.org/toxicology/mercury.php
Thimerosal (50% mercury by weight) - used as preservative in vaccines.
Thimerosal is made with ethlymercurrichloride. The concentration of this material in many vaccines is 0.01% thimerosal. This is equivalent to 100,000 ppb thimerosal or 50,000 ppb mercury in the original vaccine vial. We now know that primates exposed to injected thimerosal, as opposed to equal amounts of ingested methylmercury, accumulate twice as much of the inorganic fraction of mercury in the brain (Burbacher et.al.). Inorganic mercury has a half-life of over 700 days in the brain and has been identified as the primary toxic agent following the dealkylation of ethyl and methyl mercury (Charleston et. al). This process leads to neuroinflamation and brain injury and has recently been identified in autistic patients who have been exposed to multiple doses of thimerosal (Vargas et. al).
The FDA is working to reduce or eliminate the use of thimerosal in vaccines (see FDA Thimerosal in Vaccines) and Institute of Medicine as reviewed the use of thimerosal and found evidence on the health effects of thimerosal inconclusive (see the IOM web site).
Charleston J, Body R, Bolender R, Mottet N, Vahter M, Burbacher T 1996. Changes in the number of astrocytes and microglia in the thalamus of the monkey Macaca fascicularis following long-term subclinical methylmercury exposure. Neurotoxicology 17:127-138
Wolfgang S, Mrak R, Griffin W 2004. Microglia and neuroinflamation: a pathological perspective. Journal of Neuroinflamation 1:14
Vargus DL, Nascimbene C, Krishnan C, Zimmerman AW, Pardo Ca. 2005 Neuroglial activation and neuroinflamation in the brain of patients with autism. Annals of Neurology 57:67-81.
Burbacher T, Shen D, Liberato N, Grant K, Cernichiari E, Clarkson T. 2005. Comparison of blood and brain mercury levels in infant monkeys exposed to methylmercury or vaccines containing thimerosal. Environmental Health Perspectives. 113:1015-1021
=======================
The Safety Review of Thimerosal-containing Vaccines and Neurodevelopmental Disorders Conducted by the Institute of Medicine
In 2001, the Institute of Medicine convened a committee (the Immunization Safety Review Committee) to review selected issues related to immunization safety.
The Committee did conclude that the hypothesis that exposure to thimerosal-containing vaccines could be associated with neurodevelopmental disorders was biologically plausible.
The Committee believed that the effort to remove thimerosal from vaccines was "a prudent measure in support of the public health goal to reduce mercury exposure of infants and children as much as possible." Furthermore, in this regard, the Committee urged that "full consideration be given to removing thimerosal from any biological product to which infants, children, and pregnant women are exposed."
=========
The FDA recommends that pregnant women, women of childbearing age who may become pregnant, nursing mothers and young children do not consume certain kinds of fish that may contain high levels of methylmercury (i.e., shark, swordfish, king mackerel, and tilefish); see http://www.cfsan.fda.gov/~lrd/tphgfish.html
============
Statement of Deborah C. Rice, Ph.D.,
Maine Department of Environmental Protection, Augusta, Maine
Health Effects of Methylmercury with Particular Reference to the U.S. Population
Hearing by the Senate Committee on Environment and Public Works, July 29, 2003
Deborah C. Rice, Ph.D., Maine Department of Environmental Protection, Augusta, Maine
deborah.c.rice@maine.gov, 207-287-7822
In summary, there are four points that I would like the Committee to keep in mind.
First, at least eight studies have found an association between methylmercury levels and impaired neuropsychological performance in the child. The Seychelles Islands study is anomalous in not finding associations between methylmercury exposure and adverse effects.
Second, both the National Research Council and the Environmental Protection Agency included the Seychelles Islands study in their analyses. The only way the acceptable level of methylmercury could be higher would be to ignore the two major positive studies that were modeled by the NRC, as well as six smaller studies, and rely solely on the single study showing no negative effects of methylmercury.
Third, there is a substantial percentage of women of reproductive age in the United States with levels of methylmercury in their bodies above what EPA considers a safe level. As a result of this, over 300,000 newborns each year are exposed to methylmercury above levels US EPA believes to be “safe”.
Fourth, increased exposure to methylmercury may result in atherosclerosis, heart attack, and even death from heart attack in men, suggesting that an additional large segment of the population may be at risk as a result of environmental methylmercury exposure.
Wembley
09-15-2006, 06:08 PM
Thimerosal (50% mercury by weight) - used as preservative in vaccines.
Thimerosal was removed from childhood vaccines beginning in 2001 and fairly complete by 2002-2003. It's present in trace amounts (less than 1mcg/dose) only, with the exception of some, but not all, flu shots.
Thimerosal is made with ethlymercurrichloride.
Already known.
The concentration of this material in many vaccines is 0.01% thimerosal. This is equivalent to 100,000 ppb thimerosal or 50,000 ppb mercury in the original vaccine vial.
Not routine childhood immunizations.
We now know that primates exposed to injected thimerosal, as opposed to equal amounts of ingested methylmercury, accumulate twice as much of the inorganic fraction of mercury in the brain (Burbacher et.al.). Inorganic mercury has a half-life of over 700 days in the brain and has been identified as the primary toxic agent following the dealkylation of ethyl and methyl mercury (Charleston et. al).
So what? What does that have to do with autism? Does it say anything at all about mercury toxicity? Sailor, why don't you, in your own words, tell us what the Burbacher paper proves.
This process leads to neuroinflamation and brain injury and has recently been identified in autistic patients who have been exposed to multiple doses of thimerosal (Vargas et. al).
Does Vargas et. al. prove thimerosal or mercury as causative in conclusion? Can you explain neuroinflammation and it's role in autism?
The FDA is working to reduce or eliminate the use of thimerosal in vaccines (see FDA Thimerosal in Vaccines) and Institute of Medicine as reviewed the use of thimerosal and found evidence on the health effects of thimerosal inconclusive (see the IOM web site).
Yep, and with respect to almost all childhood immunizations in the U.S., this has been done and is old news.
The Safety Review of Thimerosal-containing Vaccines and Neurodevelopmental Disorders Conducted by the Institute of Medicine
In 2001, the Institute of Medicine convened a committee (the Immunization Safety Review Committee) to review selected issues related to immunization safety.
The Committee did conclude that the hypothesis that exposure to thimerosal-containing vaccines could be associated with neurodevelopmental disorders was biologically plausible.
So what?
The Committee believed that the effort to remove thimerosal from vaccines was "a prudent measure in support of the public health goal to reduce mercury exposure of infants and children as much as possible." Furthermore, in this regard, the Committee urged that "full consideration be given to removing thimerosal from any biological product to which infants, children, and pregnant women are exposed."
Yeah, so?
The FDA recommends that pregnant women, women of childbearing age who may become pregnant, nursing mothers and young children do not consume certain kinds of fish that may contain high levels of methylmercury (i.e., shark, swordfish, king mackerel, and tilefish); see http://www.cfsan.fda.gov/~lrd/tphgfish.html
Yeah, so? What does this have to do with autism?
Statement of Deborah C. Rice, Ph.D.,
What does this have to do with autism?
Sailor, you proved one thing - that you can cut and paste. You answered almost none of the questions asked over the course of this thread. It's tough for me to conclude that you know anything about science at this point.
Wembley
09-15-2006, 11:24 PM
Declan,
You're citing the Geiers? That's hilarious. Are you lost? Have you been misled? Did you only read the parts of the Geiers you wanted to hear?
Did you miss the RhoGAM decision?
http://www.neurodiversity.com/court/rhogam_decision.pdf
DeclanPatrick
09-15-2006, 11:54 PM
So what? Thats not scientific proof that RhoGAM's Thimerosal containing product doesn't cause autism, and it certainly doesn't discredit the research the Geiers have performed.
Wembly, really, quoting court rulings to support scientific research, as much as I disagree with your logic, I had you listed as much higher on the intellect pole.
By the way, have you read any of their research papers?
DeclanPatrick
09-16-2006, 05:23 AM
Hey Wembly,
Know any "good" doctors who need $75,000......
Anti-Vaccine Activist Offers $75,000 To Any Licensed MD Willing To Drink The Ingredients In Childhood Vaccines
Date: 9/8/06 Author: Jock Doubleday Source: SpontaneousCreation.org
$75,000 VACCINE OFFER
THE FOLLOWING OFFER is made to U.S.-licensed medical doctors who routinely administer childhood vaccinations and to pharmaceutical company CEOs worldwide:
Jock Doubleday, director of the California 501(c)3 nonprofit corporation Natural Woman, Natural Man, Inc., hereby offers $75,000.00 to the first medical doctor or pharmaceutical company CEO who publicly drinks a mixture of standard vaccine additives ingredients in the same amount as a six-year-old child is recommended to receive under the year-2005 guidelines of the U.S. Centers for Disease Control and Prevention. (In the event that thimerosal has recently been removed from a particular vaccine, the thimerosal-containing version of that vaccine will be used.)
The mixture will not contain viruses or bacteria dead or alive, but will contain standard vaccine additive ingredients in their usual forms and proportions. The mixture will include, but will not be limited to, the following ingredients: thimerosal (a mercury derivative), ethylene glycol (antifreeze), phenol (a disinfectant dye), benzethonium chloride (a disinfectant), formaldehyde (a preservative and disinfectant), and aluminum.
The mixture will be prepared by Jock Doubleday, three medical professionals that he names, and three medical professionals that the participant names.
The mixture will be body weight calibrated.
Because the participant is either a professional caregiver who routinely administers childhood vaccinations, or a pharmaceutical company CEO whose business is, in part, the sale of childhood vaccines, it is understood by all parties that the participant considers all vaccine additive ingredients to be safe and that the participant considers any mixture containing these ingredients to be safe.
The participant agrees, and any and all agents and associates of the participant agree, to indemnify and hold harmless in perpetuity any and all persons, organizations, and/or entities associated with the event for any harm caused, or alleged to be caused, directly or indirectly, to the participant or indirectly to the participant's heirs, relations, employers, employees, colleagues, associates, or other persons, organizations, or entities claiming association with, or representation of, the participant, by the participant's participation in the event.
The event will be held within six months of the participant's written agreement to the above and further elaborated terms.
To the list of potential candidates for the $75,000 Vaccine Offer, 14 members of the CDC's 2006 Advisory Committee on Immunization Practices (ACIP) have been added, as follows:
Jon S. Abramson, M.D.
Ban Mishu Allos, M.D.
Carol Baker, M.D.
Janet R. Gilsdorf, M.D.
Harry Hull, M.D.
Susan Lett, M.D.
Tracy Lieu, M.D.
Dale L. Morse, M.D.
Julia Morita, M.D.
Kathleen Neuzil, M.D.
Patricia Stinchfield, N.P.
Ciro Valent Sumaya, M.D.
John J. Treanor, M.D.
Robin J. Womeodu, M.D.
In the event that any of the above ACIP members' terms expire and they are replaced by new members, the new members will be added automatically to the list of potential candidates for the Vaccine Offer.
This offer, dated August 1, 2006, has no expiration date unless superceded by a similar offer of higher remuneration.
Contact Jock Doubleday: director@spontaneouscreation.org
In health,
Jock Doubleday
Director
Natural Woman, Natural Man, Inc.
A California 501(c)3 Nonprofit Corporation
http://www.spontaneouscreation.org/
director@SpontaneousCreation.org
To read the terms of the contract and to learn more visit Doubleday's site at: http://www.spontaneouscreation.org/SC/,000VaccineOffer.htm
Wembley
09-16-2006, 11:46 AM
So what? Thats not scientific proof that RhoGAM's Thimerosal containing product doesn't cause autism, and it certainly doesn't discredit the research the Geiers have performed.
Declan, did you read the decision? It pertains directly to the science of the Geiers. I agree it doesn't scientficallly discredit their research though.
Wembly, really, quoting court rulings to support scientific research, as much as I disagree with your logic, I had you listed as much higher on the intellect pole.
By the way, have you read any of their research papers?
Many of them, which one(s) would you like to discuss. Let's talk about any you feel provides scientific evidence that NCD Zeolite could do anything for autism.
Autismskat
09-19-2006, 01:05 PM
Wow! I guess if there is a profit to be made, everybody has a cure.:confused:
Autism is real and no therapy of any kind will " cure " this disorder. Winter Roses you have not given any good reason why anyone should buy into your scam!!
i_sundaresan
09-26-2006, 08:03 AM
Hi AutismSkat
You mentioned in your reply that there is no cure for Autism. This is not true.
There are so many real stories presented on the web where you will see many children have been cured of Autism using BioMed treatments and Chelation treatments.
I am not at all saying that NCD will help to cure Autism, but let us not be so despodent.
We have to keep on trying for our children's sake and for our sake too.
Regards
Sundar
Autismskat
09-26-2006, 12:43 PM
Hi Sundar,
Thanks for your reply, I have an older son who has pd-nos, he's had to overcome many challenges. With no bio treatments but with alot of extra tutoring, community sports, and his music( he plays the alto- sax) he's currently a straight A student, treasurer of student counsel, and he just earned lead sax player. However my youngest has had a tough time with severe autism with bio treatments that were sooo costly and did no good for him, he is on a diet and is behaving better-not chelation though that just made him sick. I'm not trying to discourage treatments but my opinion is that if someone is going to sell a product they should have experience with autism.
Many people have tried to sell me their product/treatment options and I've learned that I have to be very careful. Take care.
Wembley
09-27-2006, 01:15 PM
There are so many real stories presented on the web where you will see many children have been cured of Autism using BioMed treatments and Chelation treatments.
And they are apparently just that - stories. If children were being "cured" of autism, you'd think that would have made the national news (TV and several major magazines). If children were being "cured" of autism, you'd think organizations like Autism Speaks, CAN, and the NIH, wouldn't be busy looking for causes, and would instead be funding "cure clinics". If children were being "cured" of autism, would there be such widespread concern about services and funding for special needs?
It seems a stretch to claim that there is/are cure(s); except for a few specific genetic etiologies, the vast majority of presentations of autism remain unidentified as far as etiology. Do you have anything besides internet stories about any of these BioMed treatments that shows that they actually work? Some science would be good.
I agree with you about there being no need to be despondent though. There's nothing to suggest that autistics can't lead happy, productive lives with appropriate assistance and accomodations when needed. Autistic people may be different, and developmentally delayed - but they are not in developmental stasis.
Autismskat
09-28-2006, 11:43 AM
Hello again,
I agree that autistic people can grow to have happy lives, most adults who I have met over the years seem to be alright with everything. They know who they are and they continue to take care of themselves, many with the assistance of an attendant. Thats great we all need help with things. I'm saying that its not ok to come along trying to sell a product, with no experience of autism , and claiming it could be a cure. I'm all for therapies and treatments that do help people. And I understand that not everything will work for everybody, but we need to keep it real.
DeclanPatrick
10-31-2006, 06:56 PM
Hello everyone,
Please check this link out for zeolite updates in the treatment of autism:
http://zeoliteautismstudy.com/profile-vadekar.html
Autismkat your write speaking for everyone in the world "Autism is real and no therapy of any kind will " cure " this disorder"
Well, you don't speak for me, so please don't make such a broad and damning statement in my name or for probably most other people with an optimistic look on life. People make a buck on both sides of the barrier you have erected, keep that in mind when you are paying thousands for ineffective treatments.
For those who are open to reviewing all options and choosing one that fits well for them, then please take a look at the above link and follow your intuition, it is rarely wrong.
Healthy Regards,
Declan Owens
Lisa S
11-01-2006, 02:14 AM
For those who are open to reviewing all options and choosing one that fits well for them, then please take a look at the above link and follow your intuition, it is rarely wrong.
I think some people prefer scientific facts to intuition, Declan.
Parents who rely on intuition can be easily fooled by snake oil salesmen, but parents who look for scientific research, such as randomized double blind placebo controlled experimental results, are harder to fool.
DeclanPatrick
11-01-2006, 09:50 AM
Hi Lisa,
Off course you are correct that some people do indeed prefer scientific facts to intuition, that is their choice, and scientific "facts" are sometimes valid and sometimes a little skewed. There are many scientific facts of today that were scientific quackery not long ago. Unfortuantely some scientific facts are scientifically hidden by perceived credible institutions because the ramifications of the discovery would lead to massive losses to their "friends" in the pharmaceutical companies (the funders of their testing). Many top scientists have been reduced to quacks and charlatans by simply trying to "tell the truth" - but that off course is another story......
This is where maybe even those who require science over everything else, might want to see how it "feels" to them or does it have what one would describe as having "bad vibes"........that is my point on intuition....
About double blind placebo testing, this seems to be the tests to which all scientists bow to, if it passes this scrutiny then even the most hardened belief system can be potentially reversed.
The Regeneration principle (of Chinese medicine) asserts that we must take an active role in our own healing; the double-blind principle (of Conventional medicine) asserts that we must not. This principle keeps us blind precisely so we cannot take a role. There is evidence that the double-blind design puts patients into a state of uncontrollability, or helplessness, which provokes those high levels of corticoid hormones (that arise in response to stress, and which are very unhealthy).
Again, I am not saying there is no benefit in the double blind procedure, however like everything in science, we gotta look at it from all angles and then hope we haven't missed any......??
Regards,
Declan Owens
cpesprit
06-26-2007, 12:52 PM
hi -
IKnow this is a very new product..
I predict you will hear more & more about it..
I decided to give it a try - I have been plagued w. misc. health problems which Rxs never had an answer for..
Including chemical sensitivity ( I used to work with Tolulene/benzene in print/photo industry - these are KNOWN to increase sensitivity to chemicals)
ALso had chronic/worsening SINUS trouble.
Since starting NCD 3 mos ago..my problems are subsiding SO MUCH I am Finally confident that thsi is working for me..
after MUCH RESARCH I belive I have a dental "cavitation" infection from prior dental work (hard to detect) which is causing em lots of related health issues (SLOWLY increasing)...NO I feel the old issues REGRESSING with continued use ...
I had to use much SMALLER Does than recommended ( I use 1st 1 drop 3x/day ..now 3drops/3x/day)..cuase I was going threw detox too quickly ,needed to clear out slowly...which is fine w. me..
I ran upon this site looking for more info on the Autism link to NCD (for friends) _ I know one person who swears by NCD for autism..
From my current experience - I see no reason that it would not HELP people - by just getting rid of all the CHEMICALS (from life today) in our system..
You all should know the Link of Autism to Mercury (in ALL our lakes form COAL BURNING POWER PLANTS - Thanks EPA!!!:(
Look out for Yourselves the doctors & government (MOST) are not going to do it...
Good Luck!
Lisa S
06-26-2007, 04:09 PM
Thank you for that solicited testimonial, even though it is completely unrelated to autism, cpesprit. I'm glad you believe that it helped you with your situation.
cpesprit
06-26-2007, 04:34 PM
oh Brother..
That is a repsonse from a "Super Moderator" "Lisa" of this site..?
- whatever.....
Lisa S
06-27-2007, 12:06 AM
oh Brother..
That is a repsonse from a "Super Moderator" "Lisa" of this site..?
- whatever.....
Yes, my name is Lisa, I am a Super Moderator, and that was my response.
I am also the mother of an eleven year old daughter named Catherine who has autism and I have the same right to express my personal opinion as you and your colleagues do.
Please forgive me if I seem less than enthusiastic about the product you and your colleagues are attempting to sell here. We have a lot of experience with these so-called cures for autism and those who sell them.
I'm truly glad you have faith that this product helped you with whatever ailed you, but when you imply that it is some sort of a cure-all, I wonder whether you have ever heard of the placebo effect?
When one after another of you come here and deliver yet another solicited testimonial to us, I wonder about the person who solicits your testimonals to us and how gullible s/he thinks we are?
cpesprit
06-27-2007, 01:09 AM
...your response and insults sound more like that of an irrate teenager, (rather than someone in charge of a health message board)
and really do even not warrant a repsonse.
You should not judge someone you do not even know.
Lisa S
06-27-2007, 02:06 AM
...your response and insults sound more like that of an irrate teenager, (rather than someone in charge of a health message board)
and really do even not warrant a repsonse.
You should not judge someone you do not even know.
And you should not be helping to sell "zeolites" taken one to three drops three times a day (placebo effect) to autistic people you don't even know.
I think Dave said it better than I can:
Personally, I'm giving this a thumbs down. A pill form of chelation -- cures cancer? My wife nursed in an oncology practice for a few years, I think it a pretty dangerous claim to make for curing stage 4 patients. "Stage 4" can mean a lot of different things... one question would have to be what kind of cancer? As with many supplements, the spiel on the "wonder drug" does not have to be very truthful and/or reliable. Sure it might not kill you... but I do not believe its benefits either. You are wrong in assuming ALL or MOST people within the spectrum of Autism are victim of some heavy metal poisoning.
As a parent of an child with severe autism for the almost 12 years now... I could give you a laundry list of garbage and/or wonder drugs I have seen or been told about. My child is not a science project either... so no I will not be trying zeolites extracted from volcanic ash. The fact is there are people out there who want to make money. Unfortunately, marketing to people desperate for a cure is easy to do. I.E. Cancer, Heart Disease, Hair Loss, Aging and the list goes on.
You will also find that not all parents of autistic children are looking for a cure. If this product had the backing to prove what it claimed and I did have a child I knew to be poisoned with heavy metals... then I might consider it.
As of now... I cannot and will not support this drug. I am not God, so I am subject to being wrong... but I don't think I am wrong here.
(I will leave this post up for informational purposes, winteroses please do not repost another advertisement)
Unfortunately for us, I'm sure you were correct when you said in your first post: I predict you will hear more & more about it..
Autismskat
06-27-2007, 11:54 AM
I understand you Lisa and you are a super moderator. I know I was angry in my last post to this subject because I had lost my father to a massive heart attack while undergoing chelation therapy, also we detoxed joshua( my son) from clonidine-that was hell! How ever we did discover joshua had food allergies to be addressed which his pediatrician is very active in helping us with that. I would Like to know how will NATURAL CELLULAR DEFENSE will help with autism???? No body walks in my shoes or knows autism the way I do. I do know any treatment or therapies need to work.
Lisa S
06-27-2007, 07:28 PM
I'm so sorry about your father, Autismskat. What happened?
I lost my mother to a massive heart attack too, while she was in the hospital for a kidney infection.
Autismskat
06-28-2007, 12:52 PM
Hi Lisa,
About 12 years ago my Dad had an angio-plasti done, then 2 years after that he had a triple bi-pass done. Then my parents decided to move to Arizona and my dad lived great for along time. He had a weight problem and an eating disorder that he was in complete denial of. He started in january of 2000 the chelation therapy and he went oln a grapefruit diet-which was a bad idea because grapefruits have been known to clog arteries not clear them, dedpending on your body and your allergies. Anyways in 2002 it was July 4th weekend, my parents came to Torrence, Ca for a convention at the Marriots Hotel. My dad was giving a speech and he sang at a wedding, also when thgey came to our house I noticed my dad shivering, it was about 115 degrees that day. And we just came from Jacobs soccer game and the rest of us were hot. Well they were still finishing the house they were building and my parents bought appliances, refrigerators, washer& dryer and some other heavy stuff from a warehouse sale in los angeles. I wished they had just mailed it home b ecause they rented a u-haul and loaded & unloaded all that stuff when they got home. Then my dad had a heart attack when they were driving back into town, they were still 10 miles away from town and at that time there wasnt a clinic near by like there is now. By the time the ambulance got to them, My dad was in cardiac arrest. The flew him to Pheonix, he did die about 2 weeks later because he had great insurance, he suffered alot. I'm just not motivated to try new therapies without an fda approval, doctors recomendation, or medical evidence that it works for what its needed for.
barrymorris
08-09-2007, 10:31 PM
I'd support the earlier point about the need to carefully investigate claimed cures for autism. The more emotionally invested the issue, the less rational we can be about careful evidence gathering. Our family put together the following article after wading through the maze of interventions over the years....
http://www.autism-help.org/points-evidence-based-treatment.htm
It doesn't claim to have any answers, but does explain why we need to be vigilant with a healthy skepticism toward miracle cures, whether these are put forward to gain money by, or are whole heartedly believed in.
regards
Barry
Rionsmommy
08-10-2007, 12:18 AM
If I may, being a mother of a newly diagnosed PDD-NOS child. I have to say when someone comes on here and tries to say that their is a miracle cure for my son. It breaks my heart, because I cry every night on the things he has to jump over (hurdles) and not to mention the ridicule he will get when he is old enough for school (they have gotten worst since I was a kid, I can remember sticking up for the kids in special ed when I was in middle school)It's almost a slap in the face to us parents to make our wounds deeper.... Insensitivity that is all I have to say
StrictNon-Confo
08-10-2007, 02:27 AM
Add to that, anyone on the spectrum (your child, everyone else, too) will hear "cure for what I am" and that sends the clear message that they're a horrible disease to be eradicated, which isn't exactly good for self-esteem.
If I may, being a mother of a newly diagnosed PDD-NOS child. I have to say when someone comes on here and tries to say that their is a miracle cure for my son. It breaks my heart, because I cry every night on the things he has to jump over (hurdles) and not to mention the ridicule he will get when he is old enough for school (they have gotten worst since I was a kid, I can remember sticking up for the kids in special ed when I was in middle school)It's almost a slap in the face to us parents to make our wounds deeper.... Insensitivity that is all I have to say
Lisa S
08-10-2007, 02:21 PM
I'd support the earlier point about the need to carefully investigate claimed cures for autism. The more emotionally invested the issue, the less rational we can be about careful evidence gathering. Our family put together the following article after wading through the maze of interventions over the years....
http://www.autism-help.org/points-evidence-based-treatment.htm
It doesn't claim to have any answers, but does explain why we need to be vigilant with a healthy skepticism toward miracle cures, whether these are put forward to gain money by, or are whole heartedly believed in.
regards
Barry
Thank you for that link, Barry. That is a spectacular article. It points out how careful we as parents have to be on behalf of our children if we want to help them.
I recommend reading the whole article, but I especially liked this part:
Although we value our logical rational minds, we are easily swayed by our emotions, internal biases, the beliefs of others, and our own hopes and dreams - usually far more than we realize. History is littered with examples of medications, counseling styles and therapies that had rave reviews but were later proved to be unfounded.
Lisa S
08-10-2007, 02:27 PM
If I may, being a mother of a newly diagnosed PDD-NOS child. I have to say when someone comes on here and tries to say that their is a miracle cure for my son. It breaks my heart, because I cry every night on the things he has to jump over (hurdles) and not to mention the ridicule he will get when he is old enough for school (they have gotten worst since I was a kid, I can remember sticking up for the kids in special ed when I was in middle school)It's almost a slap in the face to us parents to make our wounds deeper.... Insensitivity that is all I have to say
That is a good point, Rionsmommy.
I think my daughter has been pretty lucky with the kids who she has been around, though. She went to a preschool that was half special needs kids and it was great. She attended public schools during elementary school, but now she attends a special school for autistic children, which has been very helpful.
One thing that helped when she changed schools in elementary school was talking to her classmates about her. We talked a lot about how she was the same as them, but a little about her differences as well. How old is Rion?
DeclanPatrick
10-04-2007, 08:00 AM
Some persons on this thread (Wembley) have no repect for the Geiers and their research, however the Geiers consistently publish studies suggesting a link to Autism & Mercury. This link has been claimed form many years by many families of autistic children.
Urine testing confirms Autism is mercury poisoning
By Kate Adams
BayToday.ca
Tuesday, October 02, 2007
US Autism & Asperger Association, Inc.
News Release
********************
WASHINGTON, DC - A new peer-reviewed scientific/medical case study confirms that many children with autistic spectrum disorders (ASDs) suffer from mercury poisoning. The new study, "A Prospective Study of Mercury Toxicity Biomarkers in Autistic Spectrum Disorders" by Mr. David A. Geier and Dr. Mark R. Geier has been published in the most recent issue of the Journal of Toxicology and Environmental Health, Part A (volume 70, issue 20, pgs 1723-1730).
This study utilized urinary porphyrin profile analysis (UPPA) to assess body-burden and physiological effects of mercury in children diagnosed with ASDs.
Using UPPA, Geier and Geier (2007) examined 71 children diagnosed with ASDs, neurotypical siblings, and general population controls. The researchers studied urinary porphyrin patterns using results reported both by the US Laboratory Corporation of America (LabCorp) and the French Laboratoire Philippe Auguste.
Their findings demonstrated that:
* Only the non-chelated patients diagnosed with ASDs had porphyrin patterns indicative of clinical mercury toxicity.
* Treating ASD diagnosed patients with chelating agents resulted in lower mercury-specific urinary porphyrins.
* The UPPA patterns reported were consistent between the two labs used.
The results of the present study confirm and extend previous observations by Nataf et al. (2006) and Geier and Geier (2006) on the use of UPPA profiling to establish the causal role for mercury in ASDs. Additionally, the current findings are consistent with those observed by many other physicians who treat patients diagnosed with both ASDs and mercury toxicity.
Thus, urinary porphyrin profile testing is being successfully used to:
* Demonstrate the role of mercury in ASD populations,
* Identify those children and adults who are mercury poisoned, and
* Track mercury excretion from affected children undergoing treatment.
For the past several years there has been a raging controversy as to whether or not mercury in medicines, especially in vaccines, has caused a dramatic rise in the rate of children diagnosed with an ASD. Many experts have insisted ASDs are caused by some yet-to-be-identified genetic cause. A paper recently published in Nature Genetics described the results of multi-million-dollar genetics study (which studied a thousand-plus families with at least two children diagnosed with an ASD using in-depth genetic screening). Tellingly, the authors reported, "None of our linkage results can be interpreted as 'statistically significant'."(The Autism Genome Project Consortium 2007).
With the current study's results, public health officials should now publicly admit what they have been saying in their private transcripts and memos: Mercury from Thimerosal-containing vaccines and other medicines has been a major cause of ASD cases, which, based on recent CDC estimates (CDC 2007), may exceed a rate of one in 100 children.
Today, any parent, physician, or healthcare provider can easily confirm whether a non-chelated child with an ASD diagnosis is mercury poisoned by having UPPA testing run at either laboratory.
CoMeD's web site, [link to www.Mercury-freeDrugs.org] contains:
* Further information on how to order these tests,
* Full copies of the Nataf et al. (2006), Geier and Geier (2006), & Geier and Geier (2007), and
* Some of the many published papers validating the UPPA test.
Lisa S
10-04-2007, 07:00 PM
http://www.sciencenews.org/articles/20070929/fob6.asp
Excerpt:
Lack of Evidence: Vaccine additive not linked to developmental problems
Brian Vastag
A mercury-containing vaccine preservative is not associated with problems in speech, intelligence, memory, coordination, attention, or other measures of childhood development, a large new study finds.
Child-health experts say that the results should allay concerns that thimerosal, a preservative first added to vaccines in the 1930s, affects children's brains.
"The study was enough to convince me that this small amount of mercury ... was not harmful to the children," says Michael Goldstein, vice president of the St. Paul, Minn.–based American Academy of Neurology.
"I think it's one more piece of evidence that thimerosal doesn't have any negative association with health outcomes," says Penelope Dennehy, professor of pediatrics at the Brown University School of Medicine in Providence, R.I.
The study, funded by the Centers for Disease Control and Prevention (CDC) in Atlanta, enrolled 1,047 children, from 7 to 10 years old, whose health needs had been covered from birth by four health maintenance organizations. The researchers combed the health plans' records to assess how much thimerosal each child received through the first 7 months of life.
Each child took a battery of 42 tests of language, memory, motor coordination, attention, and intelligence. The researchers then attempted to correlate the amount of mercury each child received—from 0 through 187.5 micrograms—with performance on the tests.
"We found no consistent pattern between increasing mercury exposure ... and performance on neuropsychological tests," CDC epidemiologist William W. Thompson and his team say in the Sept. 27 New England Journal of Medicine.
However, of 378 different statistical measures derived from the test results, 19 did show some small associations with thimerosal exposure. Twelve such measures were positive—that is, higher thimerosal exposure led to better outcomes—while seven were negative. "Five percent of the [measures] showed significant associations, and that's what you would expect by chance," says Thompson.
If thimerosal did hurt the children, "you would have found results in one direction only," says Paul Offit, chief of the division of infectious diseases at Children's Hospital of Philadelphia. "If you want to believe that thimerosal's positive association with tics [one of the results of the analysis] is real, then you also have to believe that it makes [the children] perform better in school."
Concerns about thimerosal flared in 1999 when the U.S. Public Health Service and the American Academy of Pediatrics recommended that the preservative no longer be used in childhood vaccines. With more and more vaccines being recommended, the groups were concerned that children could be exposed to amounts of mercury that exceeded Environmental Protection Agency guidelines. By 2003, no childhood vaccines contained thimerosal.
Because mercury can cause brain damage, many parents of children with autism latched on to thimerosal as a possible cause for soaring rates of the disease. In 2004, the Washington, D.C.–based Institute of Medicine concluded that available evidence refutes the thimerosal-autism connection. The current study did not assess autism directly, but another ongoing CDC study is expected to weigh in on the issue next year.
DeclanPatrick
10-04-2007, 09:37 PM
Lisa,
If these "small" amounts of mercury "do no harm" maybe Michael Goldstein, William W. Thompson, Paul Offit or Penelope Dennehy who are "sure" it is safe might want to volunteer their bodies to prove this point and then donate their prize money to Autism Research.
Surely this would be a very simple and extremely safe thing for them to do?
Why do they leave it sitting on the table....baffling?
It's like FREE MONEY - $75k for drinking a harmless concoction, that wouldn't hurt a child.
Would YOU drink it?
Maybe that's why they don't either.......
Declan
Anti-Vaccine Activist Offers $75,000 To Any Licensed MD Willing To Drink The Ingredients In Childhood Vaccines
Date: 9/8/06 Author: Jock Doubleday Source: SpontaneousCreation.org
$75,000 VACCINE OFFER
THE FOLLOWING OFFER is made to U.S.-licensed medical doctors who routinely administer childhood vaccinations and to pharmaceutical company CEOs worldwide:
Jock Doubleday, director of the California 501(c)3 nonprofit corporation Natural Woman, Natural Man, Inc., hereby offers $75,000.00 to the first medical doctor or pharmaceutical company CEO who publicly drinks a mixture of standard vaccine additives ingredients in the same amount as a six-year-old child is recommended to receive under the year-2005 guidelines of the U.S. Centers for Disease Control and Prevention. (In the event that thimerosal has recently been removed from a particular vaccine, the thimerosal-containing version of that vaccine will be used.)
The mixture will not contain viruses or bacteria dead or alive, but will contain standard vaccine additive ingredients in their usual forms and proportions. The mixture will include, but will not be limited to, the following ingredients: thimerosal (a mercury derivative), ethylene glycol (antifreeze), phenol (a disinfectant dye), benzethonium chloride (a disinfectant), formaldehyde (a preservative and disinfectant), and aluminum.
The mixture will be prepared by Jock Doubleday, three medical professionals that he names, and three medical professionals that the participant names.
The mixture will be body weight calibrated.
Because the participant is either a professional caregiver who routinely administers childhood vaccinations, or a pharmaceutical company CEO whose business is, in part, the sale of childhood vaccines, it is understood by all parties that the participant considers all vaccine additive ingredients to be safe and that the participant considers any mixture containing these ingredients to be safe.
The participant agrees, and any and all agents and associates of the participant agree, to indemnify and hold harmless in perpetuity any and all persons, organizations, and/or entities associated with the event for any harm caused, or alleged to be caused, directly or indirectly, to the participant or indirectly to the participant's heirs, relations, employers, employees, colleagues, associates, or other persons, organizations, or entities claiming association with, or representation of, the participant, by the participant's participation in the event.
The event will be held within six months of the participant's written agreement to the above and further elaborated terms.
To the list of potential candidates for the $75,000 Vaccine Offer, 14 members of the CDC's 2006 Advisory Committee on Immunization Practices (ACIP) have been added, as follows:
Jon S. Abramson, M.D.
Ban Mishu Allos, M.D.
Carol Baker, M.D.
Janet R. Gilsdorf, M.D.
Harry Hull, M.D.
Susan Lett, M.D.
Tracy Lieu, M.D.
Dale L. Morse, M.D.
Julia Morita, M.D.
Kathleen Neuzil, M.D.
Patricia Stinchfield, N.P.
Ciro Valent Sumaya, M.D.
John J. Treanor, M.D.
Robin J. Womeodu, M.D.
In the event that any of the above ACIP members' terms expire and they are replaced by new members, the new members will be added automatically to the list of potential candidates for the Vaccine Offer.
This offer, dated August 1, 2006, has no expiration date unless superceded by a similar offer of higher remuneration.
Contact Jock Doubleday: director@spontaneouscreation.org
In health,
Jock Doubleday
Director
Natural Woman, Natural Man, Inc.
A California 501(c)3 Nonprofit Corporation
http://www.spontaneouscreation.org/
director@SpontaneousCreation.org
To read the terms of the contract and to learn more visit Doubleday's site at: http://www.spontaneouscreation.org/S...ccineOffer.htm
Lisa S
10-05-2007, 05:03 AM
Declan, you didn't disappoint me. That was just the sort of fallacious argument I expected from you.
This fallacious argument is called Ad Hominem (http://www.don-lindsay-archive.org/skeptic/arguments.html#hominem).
Sure, I would drink the concoction for $75,000, assuming that it had the tiny amounts of thimerosal contained in the immunizations that a six year old child gets, but I'm not on Jock Doubleday's list, am I?
I am neither "a professional caregiver who routinely administers childhood vaccinations, or a pharmaceutical company CEO whose business is, in part, the sale of childhood vaccines."
Neither are the medical professionals in the article I quoted.
Michael Goldstein is the vice president of the St. Paul, Minn.–based American Academy of Neurology.
Penelope Dennehy is a professor of pediatrics at the Brown University School of Medicine in Providence, R.I.
Paul Offit is chief of the division of infectious diseases at Children's Hospital of Philadelphia.
William W. Thompson is a CDC epidemiologist. He and his team say in the Sept. 27 New England Journal of Medicine, "We found no consistent pattern between increasing mercury exposure ... and performance on neuropsychological tests."
William W. Thompson's study was published in the New England Journal of Medicine.
Where was the Geier study published?
Is the Journal of Toxicology and Environmental Health, Part A a refereed medical journal? I don't think so.
DeclanPatrick
10-05-2007, 07:41 PM
Hi Lisa and thank you, you didn't disappoint me either.
Are you claiming that valid peer reviewed research by two MD's needs to be accepted by "certain" medical journals before it passes as valid? That in itself is a shocking and absurd statement for an open minded moderator of an autism help group.
I wonder where the research money comes from for the American Academy of Neurology, the Brown University School of Medicine, Children's Hospital of Philadelphia and the CDC. Another story....
Anyway, there is enough reason to at least look further into vaccines and Thimerosol playing a role in autism and with the likes of Katie Wright-Hildebrand and Jenny McCarthy publically speaking out and calling for more testing to be done, I believe this to be a step in the right direction.
People need to know and consult with their chosen medical advisor about their oprtions, when this happens and your doctor is rigid in his/her belief that nothing can be done - they should have every right to seek a second opinion and not be ridiculed for it. Only when this happens can the truth be known.
I am hoping that people researching and reading this thread have enough knowledge to NOT accept there is nothing can be done for kids with autism. There are many people out there who are actively getting good results (slow but steady improvement) with their children when they change basic things like diet and include some type of detoxification regime into their childrens lives.
I cannot say that everyone will get a positive result, just like every kid who gets vaccinated does not develop autism.
All cases should be treated as individual and there is no one shoe fits all, but improvement is seen in many cases. <